dmhboyds

hi donna ,
had surgury , the doctor was worried about my scalp since i had 33 doses of radioation in 2012, now i have to hav e 33 more, he said hes gonna consult a plastic surgeoun
i have 2 little tumors he coulnt get to,
this one grew tothe size of a plum in two months time
behind my left eye .
so these other two tumors scare the crap out of me ,the radiologist is gonna hit the front one , but she doesnt thinkshe can hit the back one since she hit it already and she doesnt want to over radiate my brain

it was a stage 2mengioma ,i have trouble with words lately

i had my cranionoty may 22, now i have to go to the neurosugeoun and get the other half the stitchches and staples taking out this wed and fri go to the radiologist and see what she has planned out for me
it never ends it ended up being a stage 2 crainometry
it was a supriseto hear when the surgeon said it has to come out asap

I too am having another craniotomy, may 22, its behind my left eye , they are gonna take the top of my head off again .I may have to go throu speech thearapy.

Hi donna , whats going on ?

hi donna ,im going for blood work this thurs, have another MRI to schedule in march or april then going to my neurosurgeoun after i get the results,how are you doing ?Was just reading what you wrote , hang in there , its all any of us can do

hi donna, just thinking about you .

im hanging in there!!

donna,
ill be thinking about you on mon.Be brave ,
jim

hi donna , i went to my nuerosurgion last wednesday , no change so far, he gave me a referral for another mri ,
on the written mri report it says the superior sagittal sinus my be occluded , i asked him about this, he had to remove it , the way it works other radiologists look at the MRI and then they give it their impression , so the written MRIs my vary a little bit .
of the 4 since my resection 4 different radiologist s gave their impression.
remember to ask for a written report and the MRI CD.
I'm so sorry you have to go thru surgery , hang in there .I'm here for you if you have any questions about my surgery , i dont remember too much about it , i had a seizure on fri . and had surgery on thu..All remember is wanting that thing out of my head

hi donna , i didnt go to see my nuerosurgeon , im going to see him oct 2. his office called the day before my appt . and said he had to be in surgery .I also have fatigue, but its due to the keppra i have to take , i'm getting used to not being able to do the things i used to do , but i hope to one day.
Good luck with your appt on thursday , let me know what he or she says .Hang in there!

did you see a neurosurgeon about your small meningioma . ?
if so what was his comments ,
i had another MRI last wednesday , the results were depressing .

I watched a webinar about meningiomas yesterday , the only way they can tell what grade it is is to remove it or do a biopsy and put it under a microscope and go by W.H.O .grading system .if its small and doesnt grow they can monitor it

hi donna ,
sorry to hear that your dealing with health problems
it all depends on how big it is ,and where is , how they treat it and what stage it is ,and your age , i had a seizure while driving to work and crashed my truck ,i was given a cat scan at lehigh valley hosp.and from there they found it
it was the biggest mengioma my neurologist ever seen , they can tell more from an MRI with dye i go for one about every 3 months they can be very agressive or they can chose monitor it , if its small and in a region that it'nt important and you dont have any symptioms, memory loss , weakness in arms or legs they may chose to do nothing ,i had surgery to remove it but they coulnt get it all, then 33 doses of radiation treatments and i had a second seizure 3 weeks after rad . it causes swelling , scar tissue causes seizures , now i have epilepsy and can't do my job as a pilot .
i suggest you google mengioma ,and go on the brain tumor web site and some reshearch , it was a major life changing event for me ,
they are more common than you think , Cheryl Crow the singer has one and from what i hear last theyare just monitoring hers .

dmboyds just checked my email and see you also have a mengioma ,i can do my best to answer any questions you may have

Hello,
I am an oncology/end of life nurse. Welcome to the “What Next” family. If you should have any questions or concerns that you feel that I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

Have you made a decision as to where you are getting your treatments? Find a doctor that matches your outlook on your condition and treatment. I worked in Conshohocken for 10 years and I am familiar with hospitals in your area.I am not an expert.

Hi there. What type of thyroid cancer have you been diagnosed with? Is there a treatment plan? You are not alone in this journey. I have been through it all. Join me on my blog www.papillarythyroidcancerguide.com for my story and lots of helpful info. Please do not hesitate to message me if you have any questions.
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