cllinda

Hi, cllinda! You mentioned in a post that you are reading your 45th book. Wow! Do you have any that you'd recommend? I'm not in to scary or science fiction. Right now my book club is reading The 19th Wife by David Ebershoff.

My cancer center also had a van service to pick you up & return you home when your treatment was done. Service was so wonderful & very much appreciated. Service has now stopped for us in need to help the health system save money. Very upsetting.

Info re: bra-Playtex Gorgeous Lift/Shoulder Comfort style # 515. It's wirefree and offers great features including higher sides, fuller cups, taller back, and comfortable straps. IT"S PRETTY, too - I miss really pretty bras.

I am looking for another WhatNexter to write their story out for me to be featured on our Blog for our WhatNexter of The Week. Would you like to do that for us? It's pretty simple, you don't have to be a "writer". You just write out what has happened with your diagnosis from the day you found you had a problem and went to the doctor up through the current day. I usually just say to cover these points in your story and it writes itself.

How did you know you had a problem?
What was your diagnosis and stage?
What was the plan for treatments?
What have you had done so far, surgery, chemo, treatments?
What sort of side effects have you had?
What are some of the worst parts of the whole thing so far?
What have you learned about yourself, your family, friends, and life in general since diagnosis?
How has cancer changed your life in general?
How are you doing now? Still in treatments, maintenance, cruising smoothly and just watching?

If you write that out and email to me greg @ whatnext . com with a few pictures we will edit and put it together. You don't need to worry about most of the technical things while writing it out. We will make it flow, if needed, and edit for grammar and spelling, etc.

Thanks and I hope you can do this for us! Again, thanks for being with us and helping others.

Greg

Thanks again for helping others on the site by sharing your own personal experiences and answering their questions. Newly diagnosed members find it comforting to know that others have been where they are at and have made it through and been able to move on with life. We appreciate you!

I took one kind and had horrible joint and bone pain. I can’t remember the name but I think it’s generic of what your taking. I have a new kind to try Tamoxifen. I can’t start taking it until the pain stops from the last one. It’s scary not taking any right now.

That’s part of the problem, I think. One day they’ll act like I’m surely ready for the home. Next they’ll think I’m fully recovered & nothing’s happened. What?

Thank you Cllinda. I’m just starting my radiation. Your post helped me a lot. I can get thru this also

35 rounds of radiation. How often did you have to go?

thank you Linda.
best
jarr

thank you for your take on the experience of radiation i know that everyone is different as others have made a point to let me know,and i do know to ask the dr. questions because that’s all if been doing since diagnosed, however your reply was the opposite and very informative and gave me an idea of what could be to come for me. THANK YOU for that.

I am 58 years old. I’ve been LIVING with Breast Cancer for 17 Years. 2001 Masectomy/Chemo/Radiation. Around 2010 Diagnosed again Tumors on Brachial Nerve gradual loss of use of my entire left arm. Chemo & radiation again. Now on Ibrance & Faxladez I am more alive than I have ever been in my life. I have been married for 36 years 2 Sons both graduated University of the Pacific I have watched them grow to be awesome, kind & compassionate men. One lives near me, works with me is married & owns a beautiful home. Other in Milwaukee I get to go see him next week with my husband staying in a cabin on a lake. We loves the Oakland Athletics Baseball & go to Spring Training every year & many games. I started 25 years ago an Adult Day Program for individuals with special needs. I LOVE my job. My folks have taught me so much about LIVING. I am SOOO! Fortunate Have become increasingly spiritual/thoughtful through meditation & appreciation of life My point is I AM LIVING WITH Breast Cancer NOT living my BC. Experience/Appreciate every moment there are life lessons to learn Be Well.

Thanks clinda, i am at urgent care now to be checked out. Thank you

Thanks for participating in the conversations and adding your own experiences and point of view. Your input will help many others just to be able to read about it. We appreciate you being here and helping others!

What a positive and hopeful attitude to the question about continuing to take your estrogen suppressing medication. I'm just starting mine. The side effects are minimal and come and go. I keep thinking I can do most anything to prevent a recurrence of the cancer. Here's to a successful five more years.

Congrats on your 5 year mark! I hit mine in August. While there are no guarantees, it sure is a nice milestone. May you have about 100 more cancerversaries. And enjoy that grandbaby!

cllinda, I am so sorry to hear about your brother passing away. You are in my prayers and I am sending warm hugs across the miles.

I just finished reading your journey journaling. I'm only just beginning - port in 2 days, 1st chemo in 3. Your writing is an inspiration to me and I feel you are a very strong lady. Congratulations

Thanks for your GREAT and informative response! I have not until now, had the opportunity to join a support group, due to the other diagnosis (double diagnosis of ovarian cancer...we just conducted another scan and the cancer has dissipated! But, I still have to have surgery to remove the ovaries..the tumors are quite large @ 9cm on both sides...imagine having a double diagnosis of Adrenal Cortical Carcinoma/Pheo AND ovarian cancer! So that surgery I have postponed for May 18th..I have the Right Adrenal removed by THE BEST surgeon (Director of the Urology and Cancer Institute @ Cedars-Sinai in Beverly Hills!)....he is not only kind, interactive on-line, is very compassionate with his patients like me...He saved my life as the 'second opinion' where another team of doctors were going to literally 'mutilate' me and who put me in danger prior to the surgery...they mis-diagnosed me with a bipolar disorder as well...which took me to a point of fighting with the Heads of Administration and my Insurance company to call 'FOUL PLAY'...and I PROVED MY CASE and the Insurance Company signed (per my demand) a Special Letter of Intent to go outside the Insurance Company's coverage for MY CHOICE OF HOSPITAL AND DOCTOR @ Cedars-Sijna9i! My Doctor recognized this and WAS SO IMPRESSED with WHAT I accomplished that, he immediately bounced into action and first placed me IMMEDIATELY on BETA blockers until he personally performed the surgery! He had the DREAM TEAM on my case...The Head of Cardiology and his 2 Assistant Physicians! OH MY GOD!!! The most EXCELLENT and COMPASSIONATE bedside manner....they treated me like a QUEEN...and, told me after the surgery how AWESOME I was in surgery and post-surgery! I could have died under the care of the other hospital! He teaches doctors around the country and at the Univ of Chicago his Invasive Robotic Surgical Technique! I can talk to him just about ANYTHING! And, I have his direct number to call upon him...However, I a bit 'reluctant' to have this up-coming surgery...because I am trying to put my personal life back in order and it's VERY TOUGH! I am a bit depressed on energy BUT!@ I've been a world-class athlete (World-Champion in Water Sports & formerly with the SF Ballet)...so I know what to do homeopathically, spiritually and physically....as I also used to teach...but! I am a bit 'low' right now... and need to find a way to LIFT UP@@[email redacted]@!!! So...I'm not so bad off...I don't have to take chemo...but there is a documented and profound incidence of recurrence....HOWEVER, after reading all that I have...IT COMES DOWN TO MY ATTITUTE AND OUTLOOK at this point....I wrote an article for Fitness Magazine and LA Times which was a feature story about my success in water sports: "NEVER GIVE UP...ALWAYS REALIZE YOUR DREAMS".... I need to revisit that mindset RIGHT NOW! Thanks for your feedback! God Bless... - See more at: https://www.whatnext.com/wall_posts/889410/feed_item?hide_more=true&utm_campaign=Notify&utm_content=Vote#sthash.Vu5yanXH.dpuf

My family my faith my health

Hi Cllinda, They cut through my breast cancer too. I wrote in a message to them to do what they need to do to get it all and the surgeon still cut through it. She said she was hoping to preserve the nipple. She left the surgery room I was told and then walked back in and decided to scrape inside the nipple. This clearly points to the surgeon not doing what I told her I wanted done in my written message before the surgery. To this day I worry and think every day about the fact that what this surgeon did made my chances better for metastasis. When my oncologist read in from of myself and my friend what the surgeon had done she was clearly very concerned in a bad way. She said, "Oh no!" She went on to say that the surgeon should not have done this. After a couple minutes of my oncologist being alarmed and concerned, she composed herself and then said because my cancer is non-aggressive, the chances of any "rogue" surviving from being spread is very slim. My oncologists' first reaction was VERY different from her reaction after she had time to process the information and the situation with myself and my friend in the room. A day doesn't go by where I don't worry and think about the fact that cutting through it increased my chances of spreading it to another part of my body. Are you concerned about this with yourself? Have you been told anything? Are you taking Tamoxifen and if so, what dosage? I appreciate you sharing your information and thoughts with me. Thank you! Jenn

Thank you for the feedback on my question about sleep. I do agree that worry is more troublesome at night and it can be so hard to shut the brain off enough to sleep.
I know a couple of people that use Trazadone for sleep and also for pain. It does seem to help them.

Hello,

I'm not sure if I've already asked you about this or not, we are looking for a few people that would like to share their cancer journey story in a little detail for our WhatNexter of the week articles we post. You can see some of them on our blog page here www.whatnext.com/blog and scroll down until you find a WhatNexter of The Week article. If interested we would need you to write us a little biographical piece describing your diagnosis, treatments, and how you're doing. You can look at some of the previous posts for an idea.
Let me know if interested, and if so email it to greg @ whatnext . com
Thanks for your input on the site!
Greg

Thanks
Since this is all new to me I get worried if I am doing the right thing. But it sounds like a good decision.

ME TOO....But it DID and we have to figure out a way not to completely ruin whatever time we have. I actually go to sleep to get rid of MY Nightmare. As Soon as I Wake up the Nightmare starts again....or maybe DAYMARE...lol
B

Hi, Thanks for responding! I am a worrier. Googling lump is never good. I hope you are doing well. My sister in law is fighting her battle with breast cancer. She has triple negative.
As for my fiancé's lump, he claims he occasionally gets lumps like this and they go away. This is the first one I noticed. His doctor felt it, and checked his head and didn't seem too concerned. It isn't big, but a lumps a lump! Have a great night

Just checking in to see how you are doing! I'm here if you ever need to chat:) lynne

Thank you

Welcome to the site! Thanks for registering, if you need any help navigating the site please contact me.

If you have questions to ask post them in the "questions" tab at the top of the page. This way they are seen by everyone in the network that are most like you in diagnosis, and you will get the most help there.

Please read through the questions page, if you see someone has asked for help on a subject that you can help on, please join in the conversation. We have a lot of great people here, and always welcome those that want to help by giving back.

Greg P
3x Survivor
Team WhatNext
Community Mgr.

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Find other people like you. You can do this by clicking on "see more" in the "People Most Like You" box to the right.

2) Go to our Questions page to see what's been posted, ask a question or give some advice. Here is a link to our most popular questions: http://bit.ly/MfN45w

3) Complete your journey profile to share your experience. You can do this by clicking on "Add Experience" in the box next to your picture above.

4) Don't forget to upload a picture!

Thank you for being here and sharing your story. If you have any questions, please check out our FAQ or contact us.

Best,
Team WhatNext