cheryncp

I was listening to a Bonnie Addario LC Foundation Living Room. She mentioned that there is a group called ALKies that has over 1000 members. I don't know if it is sponsored by her Foundation (I think maybe so), but wanted to see if you knew about it. (I think I am remembering correctly that you are ALK+)

Lol, I did warn you. Not a sports fanatic. :-)

Thanks for participating in the conversations and adding your own experiences and point of view. Your input will help many others just to be able to read about it. We appreciate you being here and helping others!

You will be on the cover of our Newsletter today!

Hi. Just noticed your "note" on my wall. I did manage to see the 1/2 time snore with J. Timberlake. One would think that with such an important gig, attention would be paid to the sound system. A friend up in Maine was simply and poutingly devestated.

What is with the seeming right to riot and loot after these sporting events? Like out of a sci fi movie.

Cheers and best wishes

Greetings! Welcome to What Next. As you've already seen, there are some pretty great people here. I'm glad you've found such a wonderful treatment. I hope that all your future scans remain clean. Wishing you all the best!

Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/lung-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Hi there cheryncp! Welcome to WhatNext! I have stage IV adenocarcinoma of the lungs, but I am not ALK+.

I was diagnosed with my cancer in October 2012. I have been getting Opdivo (immunotherapy just approved for non-squamous non-small cell lung cancer yesterday) since July 2013. For me, it has been a miracle drug, not only keeping me alive, but allowing me to live.

Best wishes! I'm glad you found us here and I hope you hear from some WhatNexters who are ALK+.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter