cam32505

Not sure when ur bday is exactly but happy birthday!

Happy Birthday and many more of them. Best wishes.

Thanks for the help.

Thanks for the info. It makes the process a little less scary knowing what expect.

Hi Cam Thanks for the warm welcoming. The chemo I am on is Abraxane & Avastin. My reoccurence was found on my 5th year appointment. My gyn oncologist had me do a CA125. It had risen so she ordered a CT Scan. I had periteneal implants throughout my adomen. Once on Abraxane & Avastin, they started shrinking. My gyn oncologist told me I would never be cured but he can extend my life. It is hard being on chemo, but I am grateful for the time.

I bought my own masks and I had my mask on-I'm asking if members in other places have this problem at their clinics/ Do you check in with sick people that are coughing at your cancer clinic? Does your clinic offer masks? mine does not, that's the main reason I bought a box and carry the box in my purse. I go to the blood lab, and they have tickets for cancer patients, and we go in first to reduce exposure. This state is listed as a measle and flu epidemic area-and I go for a routine appointment-no hand sanitizer -no masks -coughing wheezing people without masks.

Hey, I'm happy to share anything I am in the process of learning about pelvic/genital lymphedema if you are suffering the same. Nearly all of the information on the internet is for lymphedema of the arms and legs, that's what made it so difficult to find help.

Hi thanks for your welcome. I also have stage 3c. Just has a total hysterectomy and am scheduled for chemo next month.
How did your treatment go? Did you change your diet any. Thanks for your help. Right now I am kind of lost and apprehensive
Judi

Are you the end of life nurse?

Thank you for your post as our diagnosis is so similar. Nice to hear you are in remission and I pray you remain so. Thanks again.

Sorry forgot to ask if you don't mimd sharing where you went for tx as we live so close ?

Sort I forgot to ask if you don't mind sharing as we live so close where did you go for tx?

I just reread your journey. It gives me such hope. Thanks for sharing.

Hi there, thanks for the encouragement. Yes it was detected early but it stems from multiple spinal fusions I've had and the possible consequence of a drug, called Amplify, thats used in these procedures.

Would you know anything about getting a port put in for chemo?

Hi. Thank you for your well wishes. How are you? What follow up test were done after you completed treatment for the uterine cancer?

HI cam32505, thank u for your concern. My oncologist has just retired and i will see anew one in few days.

My name is Sarah Sunday, i would love to share some very touching stories in my life and how i overcame it, please kindly contact me via my private email which is sundaysarah8 at gmail dot com.

Sounds like we must be in the same part of the country when you mentioned the dream cruise....I will watch on channel 7 from the comfort of home.

I had been feeding her by her port. We asked again well see what the Dr. says.

Hey Cam32505. That's what I have heard as well. If you are older, likely to die of other causes. Thank you for your input. Steven

Your post really shows how important a PET scan can be. And maybe if you had the PET scan too early, they might have missed the thyroid. Good that they caught it so early. Thank's for the inspiration.

Hi Cam, my sore throat is indeed my thyroid & it is now swelling. Did you have any similar symptoms?

Hi Cam, I am from Canton and I also get treatment at UofM. Long days for infusion but so far so good.

I am glad to see your category is survivor. Keep up the good mojo. It gives me encouragement.

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Hi Cam I had to get a biopsy because they saw something on my mammogram. I have had 2 mammograms and an ultra sound done in the last week. They still are not sure if it is benign or malignant so they is why they did a biopsy. Thanks for your support

Thanks, nothing more I like then massive diarrhea ! I will stock up on meds before I start. Glad to hear you are doing so good.

Cam,
Hugs and healing vibes. i just read about your issues finding the right dose of synthroid. Finding the right dose can take for ever. I have hypothyrodism - diagnosed pre cancer and it took us almost a year to find the right dose. During treatment we had to fiddle with the dose twice. Good luck I hope the next change is the magic one that works.

Hello cam32505- I was hoping to connect with others with similar experiences. My thyroid cancer was found during a follow up ct scan for my kidney cancer. I am in a clinical trial study for the rcc and receive scans every 3 months. My oncologist called my thyroid cancer my "nuisance" cancer, but I am finding it to be the most challenging right now. I was doing ok until after I had raidioactive iodine. I waited 8 months to do the rai in order to finish a one year course of everolimus for the kidney cancer. I too started with a level based on weight, but after the rai I became so hyper I could not stand it. My pcp was really concerned about my high level of T4 and my blood pressure so we decided to try some adjusting. It is just not coming together. I am now hypo and have gained twenty pounds to boot! My tsh has risen too. I see the endo in a couple of weeks and will have a whole body scan to see if treatment was successful in eliminating remaining thyroid cancer. Did you have raidioactive iodine? If so, do you feel it affected anything in your response to medication treatments? Also, if you don't mind me asking, are you taking any other medications for your other carcinoma?