aggie0053

Thanks. Yesterday got CT results and all looked good. Also CEA was 1.5. Otherwise, usual bowl craziness and neuropathy. Probably at this point will be forever. And, of course dealing here in the Boston area with unbelievable, never ending snow. Like again tonight. Every weekend for the past four weeks. Looks like the Artic right now and that spring will never come. Uggh. How are you doing? Assume kidney cysts are not a concern to you and your oncologist. So all good. Thanks for staying in touch. As I said before, really helps to be in touch with a fellow warrior who experiences the same fight. Keep the faith.

i'm now at the timing where I am starting to think a lot about my ct coming up in a few weeks. don't think we ever will stop worrying, except maybe for a short time after the ct/mri results show "so far, so good." Glad you also had a very good cea and am certain your mri report will also show ned. will keep you posted. so glad to be in touch with a fellow warrior. keep the faith.

Hi, thanks for staying in touch. My neuropathy after two-plus years has not lessened and as with you, I believe will not get any better. I was last Thursday to my Neuropathy Support Group, and this day there were two of us (out of about 20) with chemo-induced peripheral neuropathy. The leader of the group mentioned research with an over-the-counter supplement, CoQ10 (200mg daily) that showed effectiveness in helping reduce symptoms of CIPN. For about 1-1/2 years I was taking 1,200 mg of Alpha Lipoic Acid, which several clinical studies reported effectiveness in CIPN. I saw no improvement, so I now am trying the CoQ10. Have my strong doubts, but at this point, have begun trying. Good luck with your January10 CT scan, as can understand your being a bit nervous. I am each time, whether it is the simple blood draw for the CEA level or the CT scan. Keep my apprised as I will be thinking of you and sending out only good wishes as believe you will pass with flying colors. And as you remembered, mine will be one month later. Hope you were able to enjoy Christmas and best wishes for a Happy and Healthier New Year. Keep the faith.

Hi, thanks for remembering and asking. It was an unbelievably good 1.7. What a drop from what it once was. Have my next CT scheduled for February. That will be more telling. How are you doing and has the pain eased any now in your legs and has the overall neuropathy lessened? My neuropathy remains constant with no signs of getting any better. Let's be thankful this Thanksgiving for making it. Keep the faith and keep in touch.

Hi anggie0053, getting this news from you was terrific, as been thinking about you since last communications and this was a relief to hear, especially that you have also completed chemo. Hope that you are not left with any lasting "chemo-gifts." My last CT scan also was once again good. In fact CEA count had even gone down. Next CEA, blood test is on November 11 and hoping again that CEA is stable or even lower. Next CT is February. We are in this fight together. Keep the faith.

Hi aggie, Just checking back to see how your last CEA count was in that I remember you had yours like mine going upward last time you posted and was hoping your most recent test now showed either stable or downward CEA trend. I just had my blood test and my CEA started downward after spiking to close to 3. Next test in November and will then have an idea of it is still lower or on a roller coaster ride. Keep the faith.

I go to UofM, about 45 minute drive. Good luck on your treatment. I've been out there since May, 2011 (uterine and thyroid cancer).

Hello and welcome, we are glad you found us.We are sorry for your loss but also know that it helps to talk about these things. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/colorectal-colon-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Hi Aggie0053
Glad you found us. How can we help?
Ask any and all questions you want we will be more than happy to answer them.

I finished treatment for stage IIIa (surgery and chemo) in December and so far so good. Best wishes as you go through treatment.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter