Richardc

Hi Richardc. I think I worded my message wrong. What I wanted to know is how long it takes people to get their groceries from the grocery store every week, especially if they are going to be tired or not feeling well. I think I should post it again. Thanks Richardc.

You indicated that it took you months before being able to eat again. I am in the 11th week post treatment and still unable to eat. How many weeks were you unable to eat? Did you try and it was just to painful?

Hi, richard. I was reading your experiences & I can certainly relate to the shoulder problem post lymph node resection in the neck. A big, ongoing "pain in the arm"!! I did PT as well. Sometimes my neck/upper chest feels numb, other times like I'm being tazered, sometimes itchy, sometimes burning...seems every day is different! I'm glad you're doing so well now.

So initially you had swelling in your lymph nodes? Where did your docs determine the cancer started?

Thank you, Richardc - As a survivor I have been asked to be part of a Patient Advisory Council for the design of a new cancer treatment building in Kettering, Ohio. The Kettering Health Network saved my life and I am happy to do whatever I can to help. Another survivor on the panel told me about whatsnext. I wish I had known about it as I went through the horror of treatment. Here is a testimonial I did for the Kettering Health Network last year - I was still incredibly sick, had lost 40 pounds and still had my tracheostomy and PEG tube. https://www.youtube.com/watch?v=LymNH23dorg

Thanks for the message of encouragement. We have heard that the roughest part is right after radiation treatment. Looking very forward to a slow recovery process! God Bless You!

Hi Richadc ,I see u been a member on this website since sep. 2012. that's just happens to be the month and year I got my dx for the squamous cell carcinoma. I see yours is sarcinoma.have to find out the difference,well its not good either way u spell it.but all three of my drs.and my pet scan saids neg.all gone.but its been a year now and I still don't feel like living but for about three hours a day,and cant sleep very well. I had osteo arthoritis,and fybromyagia,before all this happen to me and now its worst. I can,t take my Celebrex anymore and the inflammation in my spine is killing me.im trying to find some natural ways out but there so many u don't know who to trust. I had a tumer on the base of my tonge.sorry never could spell verywell.lol So how long u been out of treatment and how are u feeling?

Richard, I read that you had a radical neck dissection and suffered some nerve damage as a consequence. I'm considering robotic surgery for my base of tongue primary tumor. But I'm balking at neck dissection for my swollen lymphs. Will such lymphs ever shrink on their own after the primary tumor has been eliminated?

Thank you for your experience. My husband is meeting with the dr on Monday to get ready to start radiation and chemo. It all sounds so very scary. I wish I could take it all away.

Hello Richard,
I am helping my husband through what is going to be almost a year of fighting cholangiocarcinoma. He was on Gemox for 4 months and is now on Folfiri (FU-5, Leuvocorin and Tarceva)--
we are at MD Anderson where we are getting great care from a great team. They think they have it under control because it is not resectable--the tumor is stable.
this has been a very rough road.
thanks for the support.

Anne

I dont want to believe what the doc says of my husband's cancer it is hard to believe,6mnths is not that long he is my world l spend every waking moment praying he will get better

Hearing your situation with eating l wonder why the doctor doesnt want surgery,l wonder if its becouse recovery time is longer than the life span tjey are giving him.l am going to ask when we go in

Good luck to you n thanks for talking with me.

Just started following this site. My friend and love was diagnosed with hypopharyngeal cancer in January. He had surgery one month ago to remove 2 lymph glands on the left side of his neck. The tumor board met and now they want to do radiation and chemo. Tomorrow morning we have an appointment with the dentist at the hospital. We live 100 miles away from the hospital and are concerned about the effects of radiation and chemo, and from reading everything, it looks like it would be wise to stay close to the hospital for treatment. Any advice?

Just finished up The Surgery. Went through all the the other procedures, Chemo and Radiation.
And even after month's of that I wasn't prepared for this. Just your resolutions note on Family and friends Struck me in a very meaningful way.
Good luck hand happy 2013 to you and your family and friends.
John