ableabe

Activity

  • tikonru
    Hello ableabe. was reading your wall and wondered if everything is working out so you get treated as you said you had no insurance. My diagnosis was the same as yours but I had lymph node affected as well. Heck of a journey that started July 2012 (the day after an Aerosmith concert).Biopsy #1, transoral surgery with the daVinci robot, Biopsy#3 for suspect residual, 8 Fridays of chemo with radiation daily except weekends 40 times. Journey finished Feb 2013. A fair amount of unpleasantness but worth it to be able to say that for the last 4 months there's nothing there that doesn't belong. Hang in. don't fold your hand. Finish the game. Any questions just ask. If I dont know the answer, chances are we'll find it somewhere on What Next.
    June 2013
  • Richardc
    If they do radiation, it will probably be daily treatments. Is there a hope house near where you are going for treatment? This could help with the lodging and costs. I would check with the local American society to find out what other resources are available. Most hospitals have patient advocates to help w/resources.
    As for advice, don't be afraid to communicate everything with your doctors. They've seen it all, and usually can provide medical help In getting through treatments.
    April 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

    https://www.whatnext.com/conditions/cancer/head-neck-throat-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Greg P
    3x survivor
    Team WhatNext
    March 2013
  • DaveWaz

    Welcome. Thank you for registering. Here are a few tips to get you started:

    1) Learn from people who share your diagnosis. You can do this by clicking on the "see more" in the "Who to Follow" box on the right side of this page.

    2) See what other questions people like you have, ask a question or share what you have learned. Here is a link to our questions page: http://bit.ly/XrqDMt

    3) Keep the WhatNext family up to date on your progress by posting updates. You can do this by clicking the "Share an Update" button on the center of this page.

    4) Don't forget to upload a picture!

    We look forward to helping you through your journey. If you have any questions, please refer to our help page or email us.

    Best,
    Your WhatNext Family
    March 2013