MichaelS

Activity

  • meyati
    Talk about cancer brain. I clicked on the wrong person. I wish this had a delete button. I'm really not crazy- just almost crazy- sorry, and I hope that you understand--could you help tuffjaws with five dollars?
    July 2015
  • meyati
    Honey, can you edit your GoFundMe Page. You needed to tell everyone about the dogs. How old they are-what breed they are-how they are suffering, how you feel when the one has seizures. you should have told how much the vet fees are for each dog. The pics are good. Post them on the Whatnext pinboard, and the GoFundMe link.

    You need to join FB, Post those pics. Start looking for friends and talk about the Go Fund me. Start making friends---Also you need to have a question here that's dedicated to the GoFund Me, so people can find it. Make a question- Do you worry about your pets? I've had the worst problems

    I'll be blunt, people are tired of cancer, and everyone claims to have cancer to get extra care.. Everyone asks for money or special treatment of cancer. A flight attendant was helping me on the plane leaving Denver. She went out of her way and did extra. I told her that I was thankful, and it really meant a lot to me. She said, "Ah, you have to be very tired with the long wait. It's hard being old." I said- "I have cancer and get very tired." She turned and said- "Don't say cancer! Japan might send you home. We don't like cancer. They want everything, complain, ring for water, talk about cancer. They want everything. You understand." I was asked if I had anybody waiting for me. I told her that my brother lived in Okinawa since the late 1970s. She said- Good, if you have problems with immigration, because of cancer-have them call your brother.

    On each plane I was on, one or more flight attendants thanked me for not being a needy, cranky old person, when I was getting off the plane. I flew to Denver. I was asked if I would need help going to the bath room. I told them that I could hold myself on the seats, like other passengers did. I could walk a little but my hip hurt. Not walking good, and handling my luggage was why I asked for a wheel chair.

    On the plane home, i was put behind a bulk head, so my under seat with my meds went in the overhead. I told the flight attendant that I would need help and water for my meds later on- about 6 hours later. She said- OK. When everyone was asleep and calmed down, I pressed the call button. When I was getting my meds out of the bottle, one pill dropped into the bag. She said, "You dropped the pill." I said, "Yes, I'll take another one. When I get home, I'll find the pill." She gave me such a big huge smile and said, "That is good idea."

    One in 4 people have cancer-then there are scammers that don't have cancer. We live in a world, where our care is usually very important. We need to realise than most people don't give a tinker's darn about cancer, unless it makes their job harder. We've been discussing how people are turned off, etc.

    I hope that you get some money. I wish that I could have given more--But post this on the pinboard-tell us about the dogs and how cancer treatment has been draining you. Post it as a question, so more people see the GoFundMe. Any writing- make the dog and treatment the foremost thing. Our world of cancer is a real and sad world, but in many ways it is an artificial world, because nobody really cares, and it makes some jobs harder to do.

    Personally, I think flight crews have the hardest job in the world.



    July 2015
  • LiveWithCancer
    Michael, if the Alimta quits working, check into immunotherapy. There are two - Opdivo (this is the one I am getting for my adenocarcinoma ... they are still seeking FDA approval for non-squamous cell lung cancer; recently approved for squamous cell) or Keytruda. I think Keytruda may also still be looking for approval for lung cancer - it is approved for melanoma.

    Anyway, if you can get it, at least for me, immunotherapy has been a true godsend. Unlike how I felt when I was getting carboplatin, Avastin, and Alimta, the immunotherapy doesn't make me sick and the fatigue is far, FAR less than with chemo. (I've had an infusion one day and driven over 1000 miles the next day)

    Best of luck!!!
    June 2015
  • CAS1
    There could be other issues that can effect a shortness of breath.. Have you had Radiation to the lungs? This can take a long time to resolve. Also if you are up to it ask for pulmonary rehab which are exercises for building up breathing capacity.

    Also you need to have mutation testing done to find out what target therapies can work for you.
    December 2014
  • CAS1
    So sorry you are here..but take some time and go to cancer commons and read about mutation testing and why you need to have it done.
    December 2014
  • PennieEckard
    I had a port implanted over 2 1/2 years ago for chemotherapy. It was the a great choice. It makes the treatment easier. I wish you the best. When will your treatment begin?
    November 2014
  • RIVERDALE
    when you start your treatment and even now start studying about foods and vitamins to boost your immune system.....you need diet and exercise to fight this battle as well as what the doctors do for you
    October 2014
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/lung-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    October 2014
  • LiveWithCancer
    Hi MichaelS! I got a diagnosis similar to yours just about 2 years ago. It was a scary time when everything was such a rush ... scans, biopsies, doctor and oncologist visits... and i was still trying to process, "i have stage IV lung cancer..."

    I am happy you have found us here at WhatNext! You likely have many questions and we are a very sharing group. If you want to know about our experiences or thoughts, want to vent, or just want to talk, we are here for you, day and night.

    Best of luck and please let us know if we can help in any way!
    October 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    October 2014