MamaRobina

Mama Robina: Posts I read about your husband Darrell, are over a year ago. How is he doing now..2016?

My husband the same... chemo R-CHOPS coming up soon

Hi, hope you and Darrell are both feeling good, and can have a happy and healthy new year.
Andy

Hi, Hope you and Darrell are doing well, with cancer and other medical issues under control, and you are both feeling good.

Hi Mama! I'm not a nurse and not a patient, but caregiver like yourself. I do understand helplessness, sadness, fear, anger and feelings beyond anger about this horror we are living through.

I have a paranoid fantasy that we have become "that" family, the one that people wonder what evil thing we could have done to deserve this. But no one deserves cancer and most have few if no symptoms before diagnosis!! My husband had no symptoms until he had what appeared to be a stroke became a diagnosis of stage IV NSCLC in Dec 2013. He is a model patient, involved, positive attitude, optimal diet, I'm very lucky.

Then there's my brother diagnosed Oct 2013 advanced non-seminoma testicular cancer and he has been in denial from the start. Had symptoms for at least 1 year before seeking a treatment and he's decided that now chemo is over, he's going to back to his life as usual, get the nephrostomy tubes out, internal stents in, no matter the cost. But his kidneys are failing and it's like watching someone drive over a cliff in slow motion.

There are times of great joy with my husband and brother, just glad they are feeling so well and we can be together. And there are times when I agonize over the future. There is nothing good or right or fair about your loved one fighting cancer. It is a disease that affects everybody near the patient. Stay in the present as much as possible and visit this site to unload.

If there is one bit of advice I'd give, it comes from Mother Teresa:
"You can do no great things, only small things with great love."

Thank you for sharing my photo, new to this site!

I find doing what I've always done that has pleased me the most the most pleasure, the simple things you have described.
One of the most amazing revelations that has overcome me is the love and appreciation I have for those around me, the caring and loving that comes through their eyes and the gentle way they deal with my condition.
I have come to learn infinite patience and understanding for other people now, for it is they that will bear the loss if I don't live through this.
My pain will end with my death, theirs will continue to the rest of their lives.
God love them.

How did the last chemo go? Hope you are both doing well, and having some luck in your hospital negotiations!
Andy

Hi, was just reading your journey, looks like your husband has same diagnosis that I have. Glad to hear day 1 went well, I finished 7 rounds of Treanda/Rituxin past month. Everyone responds differently to treatment, but if it helps, I res

Hope you are both doing well. Have my last radiation tomorrow, am glad that is almost over. How is the fatigue going?
Andy

Oops, typing from teeny keyboard on my phone, fat fingers hit the wrong spot. Was saying:
I responded very well to treatment, I did have a 7th round of chemo added, but otherwise it went very well. I found that games on my laptop helped get through those long days. Feel free to ask any questions, and Good luck to you both.
Andy

I don't have the same exact type of lymphoma but they are both indolent forms and treated with the same meds.

How many rounds of the r&b will your husband take. My oncologist only had me take four.

While you are waiting do something constructive like changing his entire life style. Check out The China Study AND this site below.
Good Luck!

http://www.chrisbeatcancer.com/the-raw-vegan-diet/

Barry

Make sure that he starts to Educate himself on some of the self help things HE can do.
Check out The China Study and this site below where he can talk to others in the Semi Alternative area.

http://www.chrisbeatcancer.com/the-raw-vegan-diet/

I have NO symptoms so far except the nodes in neck, groin and 3 other spots the PET Scan showed.

Tough on the emotions.

Barry

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/non-hodgkins-lymphoma-nhl

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

welcome to WhatNext. I'm sorry you needed to find us, but now that you are here you will find the greatest bunch of supportive people whose combined knowledge is awesome. We can answer your questions, hear you vent and celebrate good news with you.

I see you have begun exploring our site and look forward to learning more about you and your journey

I see you are a caregiver - caregivers are my heroes. I know from personal experience that being a caregiver is way harder then being the patient Hugs and healing vibes to both of you

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter