LiveWithCancer

Thought I would check in with you to see how you are doing. From your posts it seems you are still in the clinical trial. Just recently I was taken off. Although my other tumors have not changed, the two in my lungs are slightly changed. My doctors felt I could continue but the drug company makes the call, so I'm off. Very disappointed at first. But, now my doctors are suggesting a new approach. They think they may now be able to operate on the lung tumors and remove a lobe. Kind of scary because I've never had surgery before. But my thinking is these doctors have gotten me this far (22 months on clinical) so I don't question their judgement. Hope all is well with you. Always in my prayers. Keep strong and God bless.

Just checking in with you. How goes it? Are you still on immunotherapy? I was taken off in may. Apparently the lung tumors had shown some change and since it was a clinical trial, the drug company got to make the call. But, my oncologist suggested lung surgery which I had in June, removing 2/3 of my right lung. A few complications along the way with a great deal of joint pain but I think I'm turning the corner, now. And actually they are putting me back on immunotherapy, just a different drug and not a clinical trial. I'm interested in what's happening to you. When you get a chance let me know

I am from Lubbock,TX & was just diagnosed with the same lung cancer & have had 2 treatments. The second one had a longer recovery time. So much bone pain with tingling in feet & fingertips. I am at loss of what to do. I can truly say I am scared!!!

Thanks for your response to my question about chemo foods. I suspect you may be right about needing to eat what sounds good, and who knows what that might be. Still, I'll take something non-spicy and at least her husband will have a meal without having to cook. I'm also watching her dog so he can be at the hospital without worrying about him. I think I'll include milkshakes in case that's something she might want. Anyhow, thanks!

live with..Don't mean to intrude. Last I knew was that one tumor was growing a bit. I am wondering if they could zap it with proton therapy?

I also enjoy the sounds of nature. After my workout, I go to the beach with a cup of coffee and just enjoy the birds, the frogs, and whatever else decides to sing to me. It's just my peaceful place to relax, read the paper, knit a little and enjoy the world. It's like going on a mini vacation for a couple of hours, and then back to the real world.

How was your interview yesterday with AACR? Best.

Live, I am so sorry you lost Kiersten. Sending love, light, all meditations and best intentions.

LiveWithCancer... You have 59,721 Goodwill!! How did you do all that???

I am really so glad you just passed 2 years and all remains stable! That is just great! You know in the past year my tumor has grown and I now have more shortness of breath and coughing... Too bad I couldn't get into Opdivo earlier... but I think you had to have one of the "platinum" chemo drugs and I had that last year. I can only HOPE and pray I have good results also... hugs to you doggy mom

Hi there! I wanted to check in and see how you are doing! Haven't spent much time on the boards. Phil (my husband) has been in a stable remission in his fight with Stage IV NSCLC since June 2014 **Praise God** We have a PET scan check up at UC Davis in August. My brother (Stage IV testicular cancer) is losing his fight, his oncologist has me ready with hospice, but I can see Kurt fight all the way to the end, taking chemo until his last days. I support him either way. In my plans caring for Kurt, this wasn't supposed to happen. but cancer can be unpredictable, evil and cruel. Hope you are doing well!! So good to see your post, I will pray for your friend. God Bless, ~Kim

Hello how are you doing Am David from Miami and you

Hi, LiveWithCancer. I saw your post about the July 4th weekend. How did you and Barney do at the agility trials?

hi live its been some time. how have u been

Hi Live. I read your post where you say a tumor had grown. Is this recently? Thinking of you.

I hope you are doing well. You have been an inspiration to me. What did the doctor decide to do about your tumor growth? I can only imagine how you feel right now.

Hi live with.. do you see my new photo with my beloved Winge Dog who smelled my cancer ? I lost him in 2013 and I miss that Aussie so much..He was just 13..He was 11 in the photo.

Dear Live, Very sad to hear about your cousin. Sending love and hope.

Live, I'm so sorry about your cousin. I feel as you do about suicide.

And great news about your clinical trial! Best, Carol

Hi Again, We exchanged messages a few months ago. Would you mind telling me again what immunotherapy trial you are on? My husband has the same diagnosis. He had chemo then an immunotherapy trial, but the side effects have been to difficult. We and our oncologists are looking into other immunotherapy trials. Thanks so much for your kindness. My email is baluvia@aol.com

As to the improvements in cancer survival, "some" folks here need regular reminders of that.

As to being cancer free, it is worth celebrating, as I am heavily pre-treated and we have almost run out of lymphoma drugs to try. However, this stuff is mutating, so I am headed off next month to a tandem autologous/allogeneic stem cell transplant. If I survive that, I may reach that legendary "cure."

All the best to you!

Hope you having a lovely day and know you still making a great impact here on Whatnext. Always a light shining no matter what you going through.

LiveWithCancer, thanks for your kind words. My ovarian cancer spread. It is so scary.

Thank you so much for your kind words. It means alot. I am so glad I found this site that has such nice and wonderful people like you. Thank you for making me feel welcome.

Thank you for that page directed at Barryboomer. He can be quite full of himself.

Did you get one of your dogs certified as a Pet Therapy dog, or was that someone else on the site? We are doing a piece on pet therapy and would like to mention whoever it was.

Hello Texas; You have an interesting way of misinterpreting everything I type. It is not polite, however, to disparage me in print when you know zero about me.

I understand you are in trouble and I do wish you well but because I am able to look at the big picture (zero new cases of unbeatable cancer) and strive to get there doesn't mean that I wish you ill.

I truly believe that a cleaner environment will clean up most cancers, I have saved my own life via my life style, and I understand why you can't see past your own existence but, please allow folks to work toward a brighter future without disparaging them.

My Aunt survived lung cancer when it was still unfashionable to do so. My family is allergic to mold and she lived in an old waterfront condo on Biscayne Bay. I got a different sort of cancer from breathing mold spores long term. My Aunt died in 1991, nine years short of her goal to live in three centuries (she had been born in 1899). She was robbed.

Doubtless, you can outlive your own prognosis too. Best wishes.

How are you doing? What immunotherapy drug trial are you on? Does your trial require any specific mutations? Can you help me understand trial phases and what phase trial we should be researching?

Is this my pal, Donna with her beautiful dog?

I think you talked about being a survivor and I wanted to comment on that but didn't know how to put my comment under it??
I think is confuses people also. I think I am a survivor because I wake up every morning. I don't think a person is actually a survivor until the cancer is all out of our body and since I am terminal, I figure waking up means I survived another day!!