LegacyMom

Ok, do not know where “ abuse” came from - suppose to be “ because”, sorry about that.

Hi LegacyMom. I saw your question and you may get a helpful answer from the community.be abuse we do have several ovarian cancer survivors who are very active on this site. I can not help you with an answer this particular question but I can direct you to a site comprising hundreds of ovarian cancer survivors . The site is on Facebook and called Sisterhood of Ovarian Cancer Survivors. It is a closed site for female survivors and caregivers only, just ask to join. I have found it helpful to belong to several sites for information about this particular type of cancer since it is considered a rare type of cancer. I hope this helps and as always, wishing you better days.

Hi LegacyMom! Welcome! Cancer is a crazy journey none of us planned but here we are. Looks like you've been on this journey for a while. I've been around the cancer block a time or two -- recurrent disease but still alive and kicking after almost 7 years. I was stage IV at diagnosis so I guess that's pretty good. Whatever, I'll take it. I'm happy to be here and happy to help you on your journey if I can. Sometimes even just knowing someone else has been there before you helps.

Some time ago, I recorded a series of videos for WhatNext about my cancer journey. You may find them helpful or perhaps interesting. I've included a link at the end of this message should you wish to check them out. My hair is longer now (but still pink!) and I have a new knee but not much else has changed since I recorded the videos.

WhatNext.com is a great place for everyone, from the newly diagnosed to those of us who've been living with cancer for some time - friends and loved ones too! While you're here at WhatNext.com, check out the questions and experiences of other folks here. You can find people who've had the same cancer, surgeries, chemotherapy and experiences should you wish. It's often reassuring to know others have been through what you're facing and thrived. I also recommend the PINBOARD - there are often humorous or uplifting posts that can make your day. Definitely worth checking out.

https://www.whatnext.com/video_pages/ovarian_cancer_videos_kalindria

In the meantime, I'm here if you have any questions or want to chat.

Hi LegacyMom, welcome to WhatNext. I found this site seven years ago when, like you, I was diagnosed with stage IIIC epithelial ovarian cancer . I was almost 67 when I was diagnosed. None of the treatments for cancer are easy but they are DOABLE and survivors find hidden strengths to fight this disease, Although I had strong family and friend support I needed to connect with other survivors, those who actually had been through the treatments I was facing. I found a community of care givers and survivors who shared their experiences and gave me their opinions and advice. Additionally I gained oodles of support through some very dark days.

I encourage you to search trough the site , ask questions, and talk to survivors on their walls. We also have a very active pinboard where daily uplifting messages and pictures are posted. Today, more than ever, there are more treatments offered for ovarian cancer survivorship. I wish you well going forward and I am here anytime to talk.

Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.

If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.

We have an opportunity for you to make your voice heard with our partner Rare Patient Voice (www.rarepatientvoice.com) to be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.

Rare Patient Voice will send you an email inviting you to join their panel. If you don't respond you will be added to their panel. Be assured your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.

If you say no you will not be added to the panel.

Thank you for joining us, if you have questions please contact us.

Greg_WN
WhatNext Community Mgr./Social Media Mgr.
5X Survivor

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter