GregP_WN

guess easy to diagnose what ever cancer u have and u survive which is good thing, not like me diagnose a breast cancer and its not financially stable which is the worst part - how to cure my self if money is not available? - i was diagnose 2 months ago

Greg, since I cannot send people emails anymore please feel free to give my email address to those who need a one on one contact. I feel privileged to be able to help. Thank you! Tracy

Cancer Treatment Centers of America is the the Name of the facility. and Thanks.

Greg, my sister "nibor" is having trouble getting onto this site. She listed her email address and then chose a name that was already taken. So she changed her name, but now it says that her email address has already been taken. Does she need to have a dx in order to get on the site? If she comes on as my caregiver, can she switch if her biopsy results indicate she has breast cancer as well? thanks.

Greg, I have received 2 more emails from the Nigerian scam artist. They have not been opened, but both seem to have originated from this site. The name is Senirat Woku.

Thank you for the candid answer to my question. I feel better after having posted it but am still a little undecisive. Perhaps we should speak to his oncologist together. That is only 2 weeks away and also see how he does with this second round of chemo he got last week. I do feel he has the right to know and decide if he wants to continue the chemo or not. Not knowing if is working or not makes it even more anxious.

Always nice to see your smiling face and hear your positive thoughts! I see my light at the end of the tunnel going home and being with my black lab and my 18 year old daughter ^_^ we were working on my second cook book, guess she will have to take over since I cant taste anything, but she is a natural. wishing you continued luck and sucess on your recovery journey, I definately count on those neutra sal packets. Take care! Renee

Thank you for all the positive energy you give! had a few days I couldnt smile if you begged me, then one person just says one right thing and it all turns around into a good day ^_^ My name is Fauna Renee but everyone calls me Renee. Am so glad I found this site

Hi

I don't have a blog, but have a facebook page and youtube channel I just launched. I could kick myself for not having the vision to log everything in a blog as it happened... God knows best

GregP, you posted something about copy assistance, didn't you? Would you please post it again?

Greg, thank you again for all you do for this website and for people like myself who are often in need of answers and hope.

God Bless

Jay

Greg, the Barbara Jacoby post was offensive. I'm surprised you posted it. No one has the right to sit in judgement of people who have cancer no matter how many times they have "survived" it or how many relatives they have lost. I found her attitude self-righteous, cruel and one of the reasons so many don't get checked. No one wants the life police berating them when they are down for a situation they feel was out of their control.

hi greg thanks for ur support... whats next is a very good site to follow ... kudos to u and your team..i really appreciate it..God bless u all...

Hope all goes well today, praying for you!

Thank you drummerboy. I will surely do that. There is so much to learn, I have had MDS for 2 years, and now it is really hitting me hard. Bone cancer-MDS? What is the difference in the two, if any. Would love to chat with others that have MDS(myelodisplastic syndrome)

Hi Greg!
I got an email from a doctor claiming to be from WhatNext , his email is dr.fkouakou@rediffmail.com

Emily

Here is a copy's his email

" Good day, My name is doctor Franck kouakou 65 years old a traditional doctor from Ivory Coast West African , I'm hereby to inform you that i'm a proffessional in queering every cancer sickness which i will like tha you contact me so as to get solution to your cancer problem without payment untill you are hill and its just two month to queer you , kindly get intouch with me on for more details: dr.fkouakou@rediffmail.com Waiting for your message Your's Best Wisher Dr Franck Kouakou"

Thanks Greg,m Yes I was certainly glad for the people in "Road to Recovery" program , I know I would not have felt as good as I feel now if I had to drive so far. I have committed , (When I am fully recovered) to volunteer myself. I cannot think of a more useful way to spend a day. Thanks for all your help, I leave on vacation tomorrow...talk to all when I get back. God Bless .

I need a link so I can talk to someone about what to do now that I am done with treatments and I am different now that I am done. Unable to do same things I did before Cancer. Left with difficulties. Thanks ^_^

Moving

Some days are better than others. Being proactive aids in the process of getting the day started. So during the days of side effects of my treatments I started the day with developing an activities plan.

Those days when I was faced with a shortage of stamina and endurance I reevaluated my activities. This was due to my attitude change from saying “why not” to saying “why bother” to most things requiring movement of any kind. Initially this attitude change caused me trouble and something had to change.

On my first treatment of CHOP chemo I realized that sitting in a recliner and not moving was the most comfort I could find. I took CHOP in Wednesday afternoon and took Thursdays and Fridays off. This gave me four days to recuperate from the treatment. Having a desk I could manage, with a struggle, to work until my next chemo.

During those four days of total resting I thought I had it made and then came Monday morning. I did pretty well on getting up, showering and eating breakfast. It was when I parked at work and started the long walk from the parking lot that the extreme fatigue set in. My legs started feeling like spaghetti and an overall weakness came over my body. I made it to my desk and with some rest things improved. My four days of almost complete rest had come back to bite me
.
Here are my lessons learned. No matter how much discomfort you have, you must move. I did move after my subsequent treatments. I found it does not take much activity and you do not have to do it for a long time. You can spread it out so that you can avoid getting over tired. Some movement like walking actual improved my comfort level. As you go through your treatments both you and your body learn how to better deal with the side effects. Know that your body is doing things automatically to heal itself from the effects of the treatment to your body. This is normal and a beautiful thing.

You must be proactive to do things that give your body what it needs to make that adjustment. There can be simple things you can do to make your journey easier. One thing is time; your treatments are not scheduled to last forever and you have to have the mind-set to be willing to hang in there for the duration. Some of the other basics are rest, good nutrition, moderate exercise and drinking lots of water.

The latter is important. Drinking water is something you forget about or do not like to do. My biopsy was in my throat and it was difficult to swallow. I now keep a journal of the glasses of water I drink each day. Eight glasses per day is good and ten is better for me. One nurse told me that the best three things I can do for myself are 1) drink water, 2) drink water and 3) drink water.

I have found that beside the doctor’s orders the next best information on how to cope with side effects was from the nurse advocate of the oncologist. Everybody’s side effects are different. My nurse advocate was the one person who got into the details of my side effect symptoms and worked out an action plan for me.

Keep alert and be proactive to discover those little things that work for you. The time spent is good for the soul.

Just wanted to say hello....so.....HELLO !

Thank you for your help, Fauna "Renee" King

Hi Greg, God is great and may he continue to bless you with clear scans!!

Hi Greg,
Is this information on grieving and coping with a loss?

Thanks, GregP_WN. That's Murphy, our "son". He makes me smile every single day. He's so joyful - it's beautiful. : )

I just read your post on Boise B's wall. This is my 2nd re-occurrence since 2009 (third since 2005). At the moment I am just angry and wondering if chemo will even kill it at this point. I just don't want to deal with it right now. I saw that you had the same reaction after your 3rd diagnosis. What got you motivated again?

would you mind sending the link also for uterine cancer "clear cells". I have recently completed :my journey" and it keeps rejecting my diagnosis...little late for that lol!!

Greg, I have been checking periodically for the MDS to be added to this site as a diagnosis. I have yet to see it. Are you still going to add MDS to the List? Thanks so much!

Thanks for the encouragement! Even Mr Positive has to deal with unpleasan,t news. As we all know it is far from easy. I will not giveup there are more things to try if this doesn't work.

Keep it positive and smile

Thanks Greg. I am having diffulty getting the info about my journey right, stage, even uploading a picture. I avoid Face Book Et al, it takes way too much time. Do people not know what an MI is?