GregP_WN

Hey Greg, You may not be able to help me but I'm looking for a post about Breast Cancer reconstruction using DIEP FLAP method with the end result being a hernia. Not a good thing. Apparently it is tricky to fix the hernia but one of the What Next members had a successful hernia repair using a mesh after the DIEP FLAP by two Doctors from NY who teamed up - one was a Plastic Surgeon from NYC and the other a Gastro Doc from Long Island, I believe. Possibly Stony Brook Long Island. Funny how this post stuck in my mind since I didn't have the DIEP FLAP surgery as yet when I read it and I surely didn't have a hernia. Now I am in need of the post because of having a hernia after the DIEP FLAP. Even though I'm excellent at searching / researching on this site I can not find the post. Used every key word that I thought might pull it up. It was about a year ago, I'm guessing, that I read the post. Do you have any suggestions? Does this site keep an archive of old posts? Thank you for your time, Megs

Good Morning Greg,

I was wondering - is it possible to provide a sample to anyone suffering from mucositis?
I was contacted by Healios - a company I used personally, and was wondering if we could pass on their information.
I've spoken with their account rep and it may be possible to get a sample for anyone interested.
I didn't know who to ask, so I thought I'd try you first.

Thanks.

Good morning. There is an inappropriate post under the question about pain control for squamous cell carcinoma. Some weird guy is selling something. It is offensive. Thank you.

I have to take letrozle for keeping cancer away never had I had the right taste in food in years going on 5 sad this is can you help me on this?

Thank you Greg P _wn for all your postive posts

Hi, Greg,

I'm reaching out to you because I don't really know what else to do - you are a voice of reason here, and I need to gain some perspective.

There was a recent question posted over in the Breast Cancer group from someone who was looking for help and support dealing with her anger over persistent symptoms. As I read down the responses, I saw one from geekling that, once again, was focused on expressing her anger, bitterness, and resentment at how she's been treated by the medical system. I have heard her story before, at least in parts, and she's certainly had a bad time of it. However, although I certainly support her right to be angry - what the hell, I'm a metastatic patient, with every reason in the world to be angry - I'm not sure that going there in response to the questioner is the least bit helpful. I wrote out something in response, and, as she has done many times before, she basically spit in my face, along with anyone else who is trying to make the best out of what is a difficult and challenging situation.. I went out yet again, and put on the table that, while anger, resentment, etc. is certainly part of the normal cycle of attempting to live with this disease, if you allow it to become the entirety of your perspective, it has a negative effect. I was not personally accusatory - that's not my style - but some of these folks are new, and I don't want anyone getting the idea that their doctors are out to hurt them - there are some bad docs out there, but I don't believe that it's the majority of the profession. Needless to say, she went entirely over the edge, took my comments as a personal attack, and (attempted) to smack me around on the Forum.

I can't control how geekling perceives her disease or her life, nor would I want to per se. I don't agree with some of the things she says, but on the other hand, I don't live her life.

At this point, I am becoming a little wary of posting to any kind of question she has responded to. Perhaps, since I seem to make her even angrier than she already seems to be by her nature, it would be better for me to leave this forum, since she frequently posts on breast cancer questions.

You know, I don't always agree with BarryBoomer either, but somehow, we coexist in peace.

Thanks for letting me rant a bit. I don't expect a fix of all this, but I'd definitely appreciate your thoughts.

Best,
Christine

Shame on you!!! You asked if any of us had plans for a project or something to make this week special-or the Wall Post on making the week special.

OK, I'm not involved, I'm not telling how I'm digging a hole for a shed foundation. I'm staying out of it.

So, Levi got a big zit on his spine, in that place you can't reach. We had an old pedestal sink, where 4 screws held the sink into the wall, and the weight of the basin kept the pedestal in place.

Levi slipped and the sink was hanging by one screw, The drain pipe was busted. Guess what we did today? We put in a cabinet sink with a faux marble top. It works great- but the instructions were garbage. It took several attempts, and we had to say-- "Wait a minute, this isn't working", and we dismantled everything again.

Levi said, "Grandma, next time I get a back zit, will you take care of it?" I said- That would be lots cheaper. He agreed.

Thank god that we didn't have a flood, Levi wasn't injured, we didn't need a plumber

I wrote a song about ALL the side effects....not just cancer drugs and it's hilarious and scary. HOPE all is well...

https://www.youtube.com/watch?v=1XHG1l-NwTc

Did you do chemo more than once and if so why? Did you think why do 2nd time? And then a 3rd? I'm just not sure what way to go with my new reoccurrence.

lost you are you on fb? im hopeful journey and email is funwithmycritters@yahoo.com I remember seeing you in a book

Suppose to say respect* not react lol

Greg, I shared what you said about worrying w cowboy82001. I just wanted to thank you for the simple yet eloquent way you said that about not wasting today worrying bout ...
This is very hard to watch someone you care about slip away!! He sounds not sick, we laugh, tease each other, share experiences etcetera just like we have for over 5 months!! Lol but I'm not going to waste today worrying bout what might happen tomorrow!!! Thank you:)) much react n admiration, lynne

Hi was wondering I got a email said from what next for a survey and will give 50.00$ for your time is this true

hi - i changed my email from rudybranch@comcast.net to rudybranch15@gmail.com - i can't find any where to make this change - tks Donna Young

Hi, the cancer genetic question. My maternal grand aunts were nursing Franciscan nuns at a Catholic hospital in Omaha, Neb. They assisted in surgeries and took turns administering anesthesia. It was a messy procedure, because many patients fought-it was really hot and unventilated. When they got cancer, the family took them home to care for them. My grandfather was over 6 ft. and he bathed every day-which was a rarity in that time. His boss was an excellent Catholic in the finest sense. The hospital got strong injured men that were very scared and bragged that they never had a bath. The hospital called Grandpa's boss, who sent him to the hospital. He paid grandpa a full day's wage-sometimes extra. Grandpa and the nuns would scrub these men down, drag them to the OR, and the fight started all over again. At times the surgery staff would pass out from the anesthesia-that's when grandpa got extra pay.

My father rode around with the doctor, and he began administering anesthesia when he was about 7. He delivers a twin when he was 9. The first baby was cyanotic-not breathing- everyone passed out or were useless. The doctor screamed for my Dad, who went in and followed the doctor's instructions. Both babies survived and grew up to be healthy men. Play was rough and dangerous. Several kids needed medical attention-broken bones-dirty breaks, impalements, head wounds-etc. Somehow my Dad did rough EMT. and got the kid to a doctor. The older kids were passing out. Then he was the doctor's assistant in Youth Conservation Corps- assisted with appendicitis. He even did autopsies in the pre-war army. They'd be out in field maneuvers, -men broke legs, got impaled, got shot, appendicitis was like a pandemic-most common cause of death. No matter how hot it was, they kept the sides down to reduce contamination. The OR at Ft. Riley wasn't any better. I think that's why he got it at such a young age. His older sister also began being the nurse and assisting at a very young age. WW II is easy to figure out.

Hi Greg, I've been a member of this community since 2012 when I started treatment for my colorectal cancer. I recently had a book published about my experience, #Fuckcancer by Robert Flores. I'd like to post information about my book here. How should I go about this. It's available on Amazon.com or through my Etsy store RobertTheBold Store. I'm donating all my proceeds to charity. Thanks

Greg, thank you for acknowledging how I and many refugees saw that war. I was substituting a class with 1st generation VN-Americans. The spawn of peaceniks spoke up, and said, "I'm so tired of these VN telling us that VN was horrible, when they were rescued by the North VN. They just came here to get rich on tax money-welfare." I told this brat that the South VN suffered greatly, and there was a genocide. Even the Viet Cong general of Saigon was sent to a indoctrination camp for 6 years. He and his family went over land to Thailand. He wasn't Americanized when they sent him to camp, but he was Americanized after 6 years in camp.

I began telling them about being taken away from their parents to be slaves. The houses had to open for 3 days- and North VN tropps went in and took what they wanted, hurt girls and women, killed babies. They sent the Viet Cong to prison, even the Viet Cong became boat people trying to escape any where. I explained that Viet Nam was 3 countries that spoke the same language, but their kings always fought each other. The people of the South didn't care too much, as they thought it was just another civil war. The kids asked me why it's not in the history books. I told the kids, because we lost. Many WW II battles aren't listed because they lost- That's it's a surprise that we remember the Alamo- but Texans are special. We remember Custer, because it gave us an excuse to do the unspeakable.

Greg please delete my account. My husband passed. And continued emails and stuff r not helping TYVM

Greg,
R U deleting my comments? If so, I would prefer that you just delete whatever offends you.

Hey Greg, I sent a personal to a member worried about our data here. i told the truth that ACS must have shared some of my info, and my doctors too, as I started receiving all sorts of solicitations from california clinics for me to sign all of my money over to them when I died from this incurable thing. I don't live in California. That I also got the same thing from Duke, Boston Mass, SK, Johns Hopkins, etc. I was even sent a personal Email from Whatnext by Wes and asked to join, which was the best thing in the world for me. It was probably generated by software by my clinic or ACS, and Wes has a good form of writing that seems personal, but it's still the best thing. I told her that I don't blame her for worrying about security in this time and age. It's funny but when word went out that I'm going to live, i've quit getting all of those letters. I also went to my clinic, and told them that I didn't appreciate getting letters, not even from them. I thnk my name, address and diagnosis was sent out before I even stepped into the clinic-how else would I get letters about my death and leaving everything to them?

Is there a survey going on through What Next that might pay $100 or is this a scam? Do you know Greg?

GregP where do I post a thought. I know where to ask questions but not where to just talk.

I wanted to say I hope primary doctors or any doctor would be on the watch for people who have lung cancer. I have talked to 4 people in the past 6 months that found out they had lung cancer but was being treated for asthma, chronic bronchitis and pneumonia.

I ended up with a 9 cm mass, metastatic to my brain and none of my doctors considered cancer.

I love to sing. I've sang in many choirs. I also took a singing class. I have three songs in YouTube.com
Here are the links.
https://www.youtube.com/watch?v=J0RFhadkWS4
https://www.youtube.com/watch?v=9IeHYKLhdiw
https://www.youtube.com/watch?v=plg0DWKdQeU

Hi Greg, In May I was diagnosed with stage 1 Non Hodgkin lymphoma. I have not begun treatment yet as I have time to research treatment options as my oncologist wants to do Chemo which I am very nervous about and side effects. So I am currently searching for any and all alternatives by survivors. Thank you.

Hi Greg,
Could you please give NanaL and tiffanylg2 my email information? Thanks for everything you do!

Hi Greg, would you be able to give my email address to both NanaL and WISmom. How do I give you my email address. Thank you so very much. Brenda

Hi Greg, Would you be able to give both NanaL and BCZ my email? Thank you so much for all that you do! Pam

Hi family...im checking are url doing anything for mandela 67 min...if u hve anything plz let me knw i would lv to join plz call on 0767418921 plzzz.....

GM, TY for your answer. Sorry that you had trouble w your port Thank God I didn't. But I just wanted to know how the radiation made you feel ? I so don't look forward going to the doctors everyday. I found out that when my chemo is over in 2016 my port will be gone tooo YEAH THANK YOU LORD, I CAN'T WAIT

Hi Greg, Read your article on how to beat chemotherapy caused metallic taste. I'd like to insert a caution.

Brushing with baking soda over a period of time (months, perhaps?) is much to caustic and can remove the outer enamel or thin it causing spotty looking teeth and, eventually, cavities and necessitate replacement which, as you know, is another hell-o,

Once a week or for a short period is helpful but, on a regular basis, it is just too much.

There are other ways. That is my 2 cents. Keep well.