ElaineW

Hello ElaineW,
How is your husband now? Is treatment finished ? How are you doing?

hello I hope ur are fine, how he is ur husband now, i hope he is tolarating the meds,tell me, how many doses he finished now ??

Dear ElaineW,
My husband has been on Folfirinox for 3 months now (every 2 weeks) and he is tolerating it very well. He is 76, Stage IV. His CA 19-9 is now 45 (was 1400 four months ago). Yesterday we went to a restaurant (his last chemo was 5 days ago), came back home walking (1 mile). He walks every day and sleeps 1 or 2 hours during the day. He doesn't sleep well during the night. Has some nausea and is slowly losing his hair.
I hope that this treatment will work for your husband too!

Dear ElaineW - reading through what you have written, I have just one suggestion. You mentioned that the doctor recommended the chemo drug Folfirinox. This has also been recommended to me for possible future treatments, but my Johns Hopkins docftor indicated that - for some people - the drug can have rather harsh side effects. A possible alternative she mentioned is a new drug called Abraxane - that has less difficult side effects. It has not yet been approved by the FDA for the US, but is used fairly effectively in Canada to combat pancreatic cancer. In the US, apparently several research hospitals are conducting studies or clinical trials using Abraxane. I don't know where you live, but this might be of interest to you, so perhaps speak with the oncologist about this as a possibility. I intend to do so for my own case. Chin up! JMS

Sorry to hear of your diagnosis! Where has it traveled to beyond the pancreas? I know at first this really messes with your heart, mind, and spirit! I try to count my blessings each day to keep all of the good stuff in life from being ignored during the not so good stuff! Best wishes.....

Welcome to whatnext.com I'm very sorry to see that your loved one has stage 4 pancreatic cancer. Are they going to do chemotherapy?

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/pancreatic-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x Survivor
Team WhatNext
Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter