Diansky

Activity

  • Hellbent
    Hello, I read that you've had a partial obstruction before. My husband is currently in the hospital and on an NG tube for one. Going on 6th day ...lots of pain and tomorrow will mark one week since he has eaten or drank liquids. How long did it take to resolve yours? Any advice on what else helped you?
    January 2015
  • Bug
    Hi, Diansky. Darla-Sue asked, "Is it normal to feel nervous…?". Part of your response was "And, crying is often just an expression of your soul on your journey. Not weakness or failing to be an adult in a tough situation. Let the tears out so that you can relieve a little of your anxiety." I have been criticized for crying (not about cancer but other issues). I just want to tell you that I really appreciate your comment. Thank you.
    August 2014
  • meyati
    Sometimes you can't post an answer--You probably start best with talking to the person that you're closest to emotionally. I said, "I have cancer. The lab confirms it." I needed to go back to my PCP and get a referral to oncology.

    Several issues have been discussed on Whatnext. One is that some people get overbearing and sort of try to run your life, that many times everyone wants to know from you and nobody else, that some people can't handle it and sort of walk off emotionally. lots of people will tell how you should care for it. The person that I thought would be my medical proxy-this can be done by phone by somebody out of state-you just want to have somebody that's honest as an Artic day is long, kept putting me off. She said that she had to contact her lawyer- I said forget about it-and that's what happened to our relationship.

    If you have a large spread out family-like I have a friend, where his family meets once a year in Minnesota to catch up-they send out a monthly news bulletin. They are spread out from Norway, throughout North and South America. My family is in a neat triangle of East Texas, Alaska, and Japan.

    I was a ships' mother during 'Nam (USS PICKAWAY), and I was contacted by about 50 families that really wanted to know what was going on, even USMC families. This was before there was Email, websites, FB, or KINKOS. It was emotionally draining and time consuming. Having gone through this on the personal and one on one, make sure that you use modern communications. Having something like this can reduce rumors.

    I ended up having a biker grandson take me for treatment, the one that the doctors know, and he'll be the one to give permission to pull the plug. My son is the one to handle my finances. Don't give a full power of attorney to anyone-you can end up homeless. Give limited power of attorneys. They can be restricted to certain things or for a certain length of time. Most people give an unlimited power of attorney and there are sad consequences.

    Today most cancers can be handled and the person live a pretty good life, go back to work. I don't know why but school teachers here have a high incidence of stomach and bowel cancers. Have you seen 'Breaking Bad' ? I'm in Albuquerque. You're down for a while, and need help in making sure the bills are paid, you're children -pets are cared for, but you'll be back on your feet.

    Treatment, listen to what your oncologist says. You can come here and ask about specific treatments, and get answers from people that went through it. Sometimes, we strongly approve of it, or we recommend a second opinion, and we'll give you wise opinion why.

    In 1952, the doctors gave my dad much less than 6 months. They found advanced cancer during surgery for a construction accident in Reno. He died 3 years later. He became a Los Angeles County building inspector-crawling under floors, clambering over construction trash and materials, fishing, rabbit hunting in the Mojave Desert, riding horses, etc. Just think of what would have happened if he could have had chemo or radiation after his surgery. He might still be here.-I'm not kidding--

    I have my son on my bank accounts and safe security box. I figured that if he could handle my money when I lived in Spain, and traveled, he can handle it now.

    Like many people say--live like you'll live forever, but plan financially like you won't.
    July 2014
  • Ladykarla
    Diansky, you gave Carmelitaj excellent advice. Your advice will help many others. You changed the world. I'm proud of you!
    June 2014
  • sunshine407
    hi I am new to this site also! I have GIST. It is a sarcoma cancer. I am 61 and was diognosed 3/1/14 and had surgery to remove the 12 lb tumor 3/4/14. I just went back to work last week. I take Gleevic 0nce daily. What treatment are getting?
    June 2014
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/small-intestine-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    Team WhatNext Community Mgr
    June 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    June 2014