Whitey61

My husband just had genetic testing (Invitae Diagnostic Testing). They tested 47 genes and his results were negative, meaning that he will not be able to try the 2 drugs recently approved by the FDA.

Hello Whitey61 - I'm Carol and caretaker of my husband who has prostate cancer, Stage IV - he just went thru genetic testing, waiting for results - Greg said you might have some info about that subject. Where is the best place to read about this test prior to talking to the oncologist about the results. My husband just had his 4th Docetaxel chemo. In another couple of weeks we have a telemed call for a second opinion....

Hi Whitey61. How are you? I read your keytruda tale of woe. Were you getting tired? Have you consulted with an endocrinologist? Hope you can rebound soon. Best wishes

Hey Whitey if you can copy that story about you and paste it in an email to me I can post it for you on the site.

Hey Whitey, how are you doing? Hope you're getting along OK!

hello glad to hear about your success with keytruda ,i am also using keytruda 5 treatments so far so good was wondering what was your PD-1number mine was 100 doc said that it was first 100 he has seen and higher the number better chance of working, seeing how it's helping you i hoping for the same results and also how many treatment till you saw it was working i get a scan in feb 2018 to see were im at hoping for the best! congrats on you result and i pray they continue ....still taking a bath by myself biga17133

hello glad to hear about your success with keytruda ,i am also using keytruda 5 treatments so far so good was wondering what was your PD-1number mine was 100 doc said that it was first 100 he has seen and higher the number better chance of working, seeing how it's helping you i hoping for the same results and also how many treatment till you saw it was working i get a scan in feb 2018 to see were im at hoping for the best! congrats on you result and i pray they continue ....still sleeping by myself biga17133

Hi Whitey61!
Thanx for taking me up on the tea. The only place I know for you to buy tarragon tea is to buy a jar of the spice and bag your own .. I think they sell 0.5 ounce jars at a grocer's herb or condiment or spice section.

Or you can pay me to buy or grow, weigh, & properly measure a portion of some of the knowledge I have gleaned along my life meanderings. I havent ever seen prebagged tea made of tarragon. I would be happy to blend something up for you if you would only contact me at www.etsy.com/shop/rawmaven
There is a button somewhere that you click to contact me.
Best wishes

Hi Whitey. How are you doing? Read you are eating lemon rinds. For the volitile oils? Hope you are using organic lemons. The regular ones have coal tar dyes unless the package says differently. Best wishes

I met a man at a seminar last weekend who seems to be in the same battle as you. Very aggressive prostate cancer he has been fighting for 3 years. He is very actively seeking a clinical trial. I sure hope something becomes available very soon for you men.

Thank you Whitey61. I am finding out that a lot of the information on the computer is doom and gloom and nothing uplifting. Best to stay away from the computer, as you have said. I am just getting myself stressed out too much. Thanks again.

Hi Whitey61! Regarding the moringa, it only stays fresh a few hours. Dry ice shipping is quite expensive. I sell it as a cup of tea or as a powder to add to smoothies. I have invented (I skit you not) a way to make a milk out of it but am still figuring out a way to get it out to the public. The dry ice shipping, I am not sure it will freeze well, and to send it out dry, well it requires a bit of labor along with just adding water. Im workinh on it. Meanwhile there is tea and it will make you feel zippier because, as a fuel, it is freaking awesome. Better than coffee, no jolt, no jitters, just vitamins and minerals and essential fatty acids.

www.etsy.com/shop/rawmaven

Best wishes

Hummm... I see that I can not list an email address in a post. I belong to Team Inspire. There I am doninsanxiang. I live in China and travel back and forth to MDA in Houston fairly often. If "they" will not let me post my email I am sure a phone number is out of the question...hehe. I am fairly tenacious...this will work one way or another.

Hey Whitey, I have looked around this web site but I can not see a way for us to communicate directly without posting on your wall. I am sure there is a way to "be friends" around here somewhere, but I don't see it.
My solution is to create an email address just for you. When you email me, I will give you my actual email address and then delete the one I created for this exchange...whew! lets see what happens. You can contact me at pc@airbornesup.com Do that pretty soon and we will go from there.

Hi Whitey. So happy you have succeeded in getting this drug for a treatment against your prostate cancer. I had to read about it some...and then some more. I had not known it was available for advanced prostate cancer. I see in a trial with a group of 10 men, 3 responded very well but the others did not respond. That looks like 30% to me. I know there are several clinical trials kicking off some where around the end of summer that are focused in testing immunotherapy as a treatment for prostate cancer. It seems that immunotherapy is the only thing that can actually cure men with advanced prostate cancer. Sometimes it can be slowed down by other means but, until immunotherapy, it was all temporary. I am at about the same level as you are...actually, a bit further along from when I was first diagnosed. I deeply believe in immunotherapy. The very best of luck to you!

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There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

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Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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