Virginiamarder

Virginia, I was diagnosed with stage iV follicular in Feb 2012 scared me to death not knowing if I would live or die. I would like to encourage you to relax because you will beat this. I had 8 rounds of chemo called RCHOP at MD Anderson. It took me 7 months to get through it and it was a tough journey but mostly fatigue. I have been in remission for 14 months and feeling great except for a few acquired aches and pains. I feel so thankful and blessed for my life. Rosemary

Hi Virginia, welcome...I too am a resident of Naples and would be happy to answer any questions you have about our cancer. I am 63 yrs old and was diagnosed with Stage IV T Cell Lymphoma in July 2010. After three opinions, my wonderful Oncologist in Naples sent me to MDAnderson in Houston for a third opinion and treatment. He had never seen my type of Lymphoma since there are only about 100 cases documented worldwide. He worked with them diligently and, after they told me my prognosis was maybe 8 months, I am now in remission. There is so much advancement in the treatment of blood cancers now so please stay positive. I am here for you if you need to talk to someone.

We are in Sanford...Hubby has stage IV and is doing the Rituxin, Bendamustine chemo. He is scheduled for a scan. Did you get the referral to Moffat and can you recommend the facility?

What is your diagnosis? Treatment varies widely, as lymphomas comprise a vast variety of diseases, but may require completely different treatments.

Welcome, Virginia! I have a different flavor of lymphoma than you but still doing a lot of the same things you are. ACSHIPWA (Andy) posted on your wall earlier. He's one of the good guys. He's always happy to answer questions. Post in the questions section of the site. You'll be amazed at the feedback you'll receive.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr.

Hi Virginia, Welcome to Whatnext, I was diagnosed in May with follicular lymphoma. there are a lot of great people here that are going through the same thing and can answer questions or just offer support. I have made some great connections here that have really helped me with my battle. Good luck.
Andy

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter