Laurasalzy

Hi Laura,

I was diagnosed with PTCL-NOS in early March and have been going through treatment since. I'd love to speak with you about your journey if you have time! Congrats by the way, you are a strong woman, and its admirable that you stay in touch on the forums offering support.

-Justin

Thanks for getting back to me Laura! Is there a way to send messages on here privately?

Another T-Celler here. Finally diagnosed with PTCL-NOS in July, 2008. Stage 4 with "innumerable" nodes and bone marrow involvement. I see that you have certainly been through a lot! I also see you were in a clinical trial. I was in the phase 2 trial of Romidepsin (Istodax) and remain in the long-term study of the drug. Side effects are acceptable, as this is not a chemo drug, but a biological one. Here is a link to my journey, if you would care to read it. As you can see, faith played a huge role throughout, and still does. http://forums.lymphoma.com/showpost.php?p=486384&postcount=1