TeriAbby

How are you doing? I haven't heard from you in a while. Please bring me up to date.
Judy

Hi TeriAbby,
Just wondering how you are doing? You're not too terribly far from me. Did you ever get better feedback from your Dr? Just remember there are others around that are great. Mine is in Melbourne. Are you still doing chemo? Wanted you to know I was thinking about you.

How you doing?

Hi TeriAbby, see that you had your surgery on the 25th. I hope you are doing well and it was a success. Wishing you a speedy recovery.

Hi TeriAbby - Looks like we share a similar diagnosis. I'vw been cancer-free now for 3 years. I received warm & encouraging words through people on this site when I was in active treatment, and I trust that you will, too. God bless you along your journey.

Hi TeriAbby,
Take heart. It's not over til it's over. I was diagnosed stage IV endometrial cancer about a year and a half ago and I'm doing fine right now. I went through chemo and radiation without much difficulty. You will be able to do more than you ever thought possible and the people on this site will help you. We've been there...done that. You don't need to hide your panic and tears from us. We will help lift you up when you're at your lowest and help celebrate your victories. You WILL have victories. My philosophy has always been: plan for the worst and hope for the best. If you are prepared for the worst you'll find that most of the time it doesn't happen and things get better. We all worry about what "might" happen and waste too much of "today" time worrying about tomorrow. You can do this. Not knowing is always the hardest part. You are stronger than you think.

Hi Teri. Welcome to What Next. As you've already seen, there are some pretty great people here. If you have any questions, please use the question tab above -- that way the entire network will have access & you'll get a quicker response. I was diagnosed w/stage IV endometrial cancer (adenocarcinoma) back in Aug 2012. Different than what you have, but I am still plugging along. Be careful w/statistics. If I believed what the internet said, whew. I only had a 5% shot at making it 5 years. First those stats are at least 5 years old. Second, we are all unique. I have a weird cancer, in that it's slow moving and my mets went to something that could be removed. And remember, you don't have to be brave here. We have all had questions, needed to vent, needed to have meltdowns or temper tantrums. It's ok -- this is a safe place to do that. And I'm glad you found us even if I am sorry for the circumstances that led you here. Wishing you all the best.

Hello teriabby, I know you are just beginning your journey, and naturally you're frightened. I had my symptoms for a year before I went to a doctor, due to insurance issues. Not really a good reason not to get medical care. I was stage IIIC when I was diagnosed. That was in 2011. I had surgery, chemo and radiation and am in remission as of April, 2015. Take care. The treatment will be long and tough, but it is survivable these days. Take care.

So glad you found this site. I had a diagnosis of Stage IV 2&1/2 yrs ago and have been through chemos and still getting targeted therapy via infusions every 3 weeks. Judy in Florida says it best and it is my mantra as well. Plan for the worst and hope for the best. You can do this just as we all wondered when we were diagnosed.
And Here we Are!! Let others in to help you get there.

Hi TeriAbby, so sorry for all the pain , testing and traveling you are going through. Yes, that feeling of a tight belt being cinched around my abdomen scared the xxx out of me. Unlike you, I had no pain, If I had would have moved more aggressively in my medical care. I too was scared, and an emotional wreak when diagnosed. My doctor put me on a mild anti depressant and it really helped me to cope.I am not a pill popper but I figured you need to use all the weapons at your disposal to fight this xxx disease. Hope you have a good support system at home, my husband was my rock and my children and friends were good backups. All of us on the site are here for you and we all have had that "oh no" moment. Do not hesitate in the future to reach out.Please stay in touch. Wishing you better days.

I am sorry. I remember the shock and I'm not sure that I'm out of shock 2.5 years into fighting my uterine leiomyosarcoma. I am glad that you are at Mayo to determine the exact type of sarcoma that you have, it is imperative that you have an exact diagnosis in order to treat it. Once diagnosed, please go to acor.org to join a listserve of patients with your exact type of cancer. The acor.org listserves are divided into exact cancer types where patients share treatements, side effects, doctors, etc. specific to their cancer. This WhatNext site is great for comraderie and information to cancer in general, I'm not dismissing it in the least. It is just that you also need information specific to your exact type of treatment that is found on acor.org. I imagine that you, like me, will have to travel for treatments because sarcomas are a rare cancer that must be treated at a sarcoma center. acor.org lists sarcoma centers. I am preparing you for the mind-set that you may have to travel for treatment (not just for the initial diagnosis). Please let us know your diagnosis. Probably Mayo will test your tumors for genetic deviations in search of targeted chemotherapies that are designed to work on your specific dna mutation. Also, they will probably test your tumor to see if it is hormone positive because a hormone inhibitor may be prescribed to help inhibit tumor growth. Pls let us know your diagnosis. Ask your doctors all your questions then ask them again and again until you understand all you need to know. Until then, take care.

Hello. Hope your pain is being better controlled today. Been reading to familiarize myself with your journey. Sorry you have suffered so much and await test that should be expedited. In the early days there seems to be no way to grasp the exploding feelings of a lost reality. As the pieces of the puzzel start to form it will hopefully give you a sense of control again. When I look back it all seem so sporadic and all over the place but it was all coming together. I see it now but I couldn't when in the mist of it. You have come to the right site for support. Wonderful people here.

Hello TerAbby. As I write this I know you are waiting on more information about your cancer. Presumably your doc will be able to put together your treatment plan once he/she has the results back from CA. Is surgery out of the question? No hysterectomy?

I was just wondering if your doctor is a gynecologic oncologist.

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter