Rosegarden

Hi Rosegarden, stopping by to find out how you are doing lady. So far so good with me. Hope this post finds you the same.

You asked about the emails for the studies, yes they are from one of our partners. A pharma company that is studying new possible drugs and past experiences with current drugs. It's an easy way for you to make a little change and help develop the next generation of drugs and or treatments. Just click the link in the email and it will take you to a questionnaire about your current or past experiences, this will determine if you will qualify for the actual study. Nothing to lose, everything is kept confidential. Let me know if you have any questions.

Rosegarden, sorry we were unable to arrange a meeting. Worried since you haven't been on for awhile.Hope your chemo is going well.

Hello. I am getting ready to begin my sixth cycle of IV/IP chemo treatment at Stanford. Once complete, I am currently planning to do a year of maintenance IV treatment in hopes of extending my remission. I am 51 & have a 7 1/2 year old son.

Please do keep in touch. As an aside, I have a great source locally for wigs and a certified cancer esthetician. If either of these are of interest, please let me know.

Rosegarden, how are you doing? Thought I would let you know I will be visiting my daughter on the 29th, 30th , and 31st of this month.Since you are still in treatment you name a place you would like to meet if you still want to.Could be a park,or we could have lunch or perhaps a cup of coffee. Let me know. Take care.

Rosegarden ,how are you doing? Are they hydrating you and is your nausea better? Finally finished my chemo and am officially in remission.Start the wait and see .Take care think of you often.Hang in there.

Rosegarden, hope you are feeling better. When is your next treatment ? Was able to do two treatments this week , the. Taxol and also the Cisplatin. Hopefully my blood work will let me do next Tuesday's treatment of IP Taxol, then done and in remission. Keep in touch ,help anytime if. I can. Take care, rest and gain your strength back.

Hi Rosegarden , hope you are feeling better and stronger everyday. Went in for first day of final round of chemo and had minor setback, because my neutrophil count was so low my chemo has been delayed a week. Very disappointed am a little down but not out. Nurse said delay will not affect long term outcome, so I wait for my body to become stronger. Am changing my first day in remission from the 19 th to the 26th with no more delays. Let me know how you are doing, take care.

Rosegarden so good to hear from you. Glad you have that heavy cast off, a walking boot is much better. Sorry about the discomfort you have had from the port insertions but you already know it gets better. Why do doctors give pain medications that cause nausea and vomiting? Had that happen to me when in tha hospital with my debulking surgery. Before starting chemo buy a small tube of Lidocaine cream and rub it onto the port or ports they are accessing about an hour before hand, this will help relieve any discomfort when they access the sites.THe first time I covered it with Saran Wrap then the infusion center gave me some shields to use. Just ask, I am sure your center has them too. Replying to your question about eating. Before chemo I have a normal breakfast. On days I receive just IV Taxol they give me anti-nausea meds. and steroids then the Taxol all through my chest port. The steroids will give you an appetite and my husband often brings me in some lunch which I scarf down. I usually feel good the whole day of my chemo treatments, it isn't til the day after and for several days after that that I have to take my oral anti nausea med. to keep my appetite working also feel very tired and take naps. Your IP treatments are longer. They want to make sure you are well hydrated. I have IP with Cisplatin then a week later IP with Taxol. Cispllatin lasts about seven hours the Taxol between four and five hours. The Platin meds are nasty and my side effects are magnified . Again day of chemo good appetite. I take steroids orally for two days following my Cisplatin treatments and appetite is pretty good , continue to take anti nausea meds to ward off nausea. Have experienced some bone pain and constipation with the Cisplatin for which I take Colace. Have actually gained weight on chemo, about five pounds. Main thing for me is taking the anti nausea med before I am actually nauseated, have had no vomiting. Stay well hydrated, these treatments can be hard on the kidneys. I will be thinking of you next Thursday, It is my Cisplatin IP day. Keep me updated,all the best.

Hi Rosegarden,sitting here in chemo, the long 7 to 8 hr. one and thought I would play catch up.How are you?How is your ankle? Saw my doctor two days ago and he is happy with my progress.Starting in three weeks he will start doing pelvic exams on me every three months,ugh, not a big fan but apparently necessary.Says the best indicator of how I am doing post treatment will be how I feel.He will keep running the ca125 test but says it is not reliable and many countries do not even use it anymore. A CT scan would be his last resort test only if he felt something on the pelvic. So this is how it will be ,for how long I didn't ask. Hope to do some traveling in our RV when done with chemo. will have my abdominal port taken out but am planning to keep my chest port in for awhile it will need to be flushed about every five weeks. SO keep me informed of your journey,lady and the best of luck.

Rosegarden, you have been very quiet thought I would drop by to ask how things are going. I am in chemo today, still have two more full cycles to go for a total of six chemo treatments then we will see. My ca-125 is down to 12.6 from 1441 at the beginning. Hope this will be a better year for you . Take care.

Welcome to What Next. Hope you will find some laughs, some people to share with honestly, and a lot of virtual support.

Rosegarden, how did your appointment go on the ninth? Did they lay out a course of treatment for you? Wishingyou all the best. Let me know if I can help in anyway, Just started my cycle one of four cycles through my abdominal port, so far so good. Wishing you and your family all the best at Christmas and into the New Year.

THE PORTS ARE A GOD SEND. HAD NEVER HEARD OF THEM BEFORE CANCER, BUT I FIND IT VIRTUALLY PAINLESS FOR THEM TO INSERT THE NEEDLE - THOSE CHEMO NURSES ARE GOOD AT WHAT THEY DO. YOU WILL FIND THEM TO BE YOUR BEST SUPPORT SYSTEM AND BECOME VERY GOOD FRIENDS. NEVER THOUGHT I WOULD BE GETTING CHEMO AND VISITING AND LAUGHIING. THE DRUGS FOR NAUSEA ARE AWESOME - GO INTO IT WITH A POSITIVE ATTITUDE. THAT HELPS. GOD BLESS - IN MY PRAYERS.

Rosemary, I will be in chemo on the 19th. forgot to mention that your taste buds will be affected by the chemo . Everyone is different. I couldn't eat bread because it tasted like cardboard, but I found enough other things to eat. Take care.

Rosegarden, Those are the same chemo drugs I was given. I know you are still trying to make sense of everything that is happening to you. I felt depressed and was weepy at first. I had strong family support and my doctor put me on a mild antidepressant. I have become a fighter and this site has been so helpful.To talk to others who have or are going through the same treatments you are is invaluable. Please keep me informed of your progress, we are all here to help.

Hi Rosegarden. Debulking surgery is when your surgeon removes all visible signs of cancer. With me, I had several tumors including one small one on my colon and one on my diaphram. With ovarian cancer the surgeon will examine the whole abdominal cavity. Usually the ovaries, Fallopian tubes and uterus are removed. They will also remove the omentum, a layer of peritoneum that surrounds the abdominal organs.Because several of my tumors were large I had two rounds of chemo prior to the surgery. For the chemo I had a power port inserted into the right side of my chest just below the skin. This provides I.V.access for the chemo and saves the veins in your arms.To access the port the nurse will stick you with a short needle then hook up the tubing and I.V. I am a little sensitive to the stick so I apply some Lidocane cream to the skin about an hour before my treatment and it is a piece of cake. The chemo does well through the port. It is an out patient procedure to insert the port ,they put me to sleep. You will be a little sore after the insertion, I was on pain pills for a few days but after awhile you almost forget you have it.It is visible when you look in the mirror. The abdominal port is much the same except bigger and just below my right diaphram. My doctor is giving me IP chemo where he will introduce chemo fluid into my abdomen to kill any microscopic cancer cells still present.I will have four rounds of chemo this way taking anywhere from 6 to 8 hours. Also want to say the port does have a small cath attached to it which goes into avein in your chest thus the I.V. Access. Also want to say they have wonderful medicines now that really help with the chemo treatments in preventing nausea.

I responded to your comment on my wall but not sure if you get notified I that or how it works, so I thought I'd respond here too. . In my mom's case, her ovarian cancer had spread to multiple implants on her abdominal lining. The tumors were too big to operate on at first. She did IV chemo for several weeks in order to shrink those tumors which they were successful in doing. She then, 3 weeks ago, had the surgery to remove all the tumors. Next week she will start more IV chemo as well as more intense IP chemo (given directly into her abdomen through a port she now has there). That should be able to kill all the remaining cancer cells. My Mom is on here too- it's Lynne-I-am.

Hi Rosegarden, I am Kelly 's mom and as she said I found out I had cancer in August. You are probably still in disbelief like I was, It totally blindsided me. I have since received two rounds of chemo through a chest port and three weeks ago had my debulking surgery where the doctor staged me as IIIC. I had an abdominal port put in during the surgery and start IP chemo on the 12th. Finding this site has really helped me cope. Everyone is here to help. Feel free to ask questions.Best of luck. Look me up, I'm available to talk anytime.

I AM STAGE IIIC OVARIAN CANCER. I HAD MY SURGERY ALMOST 2 YEARS AGO. STAY TOUGH AND POSITIVE. YOU ARE IN MY PRAYERS.

Hello,
I am an oncology/end of life nurse that specializes in gyne cancers. Welcome to the “What Next” family. If you should have any questions or concerns that you feel that I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

Hi there. My name is kelly and my mom has stage 3c ovarian cancer just found in August. I live here in Fresno while she is up towards Redding, but she visits as much as possible. I'm sure this is shocking news for you. I'm glad you found this site as it seems to help my Mom some. Will say a little prayer for you and your journey.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

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Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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