New2CLL

Activity

  • anniemk
    It's very slow, hang in, there are targeted therapies you'll have the opportunity to try.
    August 2016
  • Patisblonde
    Hi how are you doing, I haven't been on lately but need to keep getting my emails now, my lymph nodes in my neck just popped out this weekend, so sore....I'm a wreck w CLL as I have to have a total knee replacement on my left knee if my WBC goes too high, I'll never get it done..Don't have any support so bad...Pat
    September 2015
  • Patisblonde
    Hi I too have the same condition, my doc said stage 1 to me today but in the next day will have a biopsy of my lymph node under my armpit. Then they will really know and he said I may be in stage 0 depending what the outcome is. He also did alot of genetic tests of my blood today so will know in the next 3wks the outcome of all of that. I like my oncologist so that helps alot, he is patient and answers all my questions. My next appt will be for 1 hr was really impressed but alittle nervous at the same time.
    April 2015
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    March 2015
  • kenbre
    Hello, my husband Is also your age, in the "Watch & Wait" stage and was diagnosed on December 24, 2013. That is one Christmas eve we'd like to forget however it has made us realize what is really important in our lives. We try to make the most of each day although this can be a struggle at times.

    Welcome to the WhatNext family! God bless!
    March 2015
  • greece
    Hi, I saw your post yesterday. I also have the same diagnosis as you. Thanks for following me.
    March 2015
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/leukemia/chronic-lymphocytic-leukemia-cll

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    WhatNext Community Mgr.
    March 2015