NETsurvivor

Hi NETsurvivor! How are you doing? I haven't seen you post in awhile... I hope you are finding it easier to eat & that time has eased the pain of losing your Cancer support person!
Are you in active treatment now? Do you participate on any of the other NET support sites?

Hi NETsurvivor...so good to hear from you. Also very glad that you are able to eat more things. In time you will be able to eat meat. Having lost your gallbladder in addition to 25% of your other parts... the stomach, pancreas it is more difficult to eat. The gall bladder would help your system to digest meat. It took me about one year to eat meat after I lost my gallbladder. Are you taking enzyme pills? If not check with your doctor and see if that is something you should be taking. I'm doing good, a few days ago I vomited twice, but that is part of my new normal. I get very nauseated and then vomit. This happens once every few months.
Take care of yourself and check about those enzymes pills. Once again...great to hear from you. My best to you....Russ

Thanks for asking! I'm doing ok! Can't say GREat... But I'll take ok with a smile! I go for my 6 mos. scans in a few weeks..I always get a bit anxious about the results!! Praying I remain stable! Each time I've heard that... I feel better for months!! Haha... Our minds are so entangled with this cancer stuff!!

I haven't seen you post in awhile?? How ya doin'? Hope things have improved! Did you have that nex t surgery? Is your son still overseas in school?

Hi-lets stay in touch. I just didn't expect that at all. You probably don't have a good bus system there. I grew up in south Torrance. The only way to get to the beach or Redondo was to walk about 5 miles one way. Now I really understand your transportation problem.

I didn't think of giving her a Xmas present-because she told me not to bother her. I never said anything or made a fuss with her, because my son would have been in the middle. I showed him the Email. I told him that she's his girl friend-that's OK, but we shouldn't talk about it any more. Please don't talk to her about me.
One time she asked, and he said, "What do you expect, she has cancer." She never said anything that I know about.

They go out. He comes home, and I ask him if he had a nice time-I do this about every 60 days. He says it was nice- and I say-Good-

It's just that I felt so alone and betrayed.

Hi, I wanted to ask how you've been doing. I'm reading it on your wall. I'm so sorry that you're getting these problems one right after the other. Some people say that such things make us stronger. I tell them that I don't want to be stronger or a better person, I'm just so tired.

Where is your son going to study? That sounds so great. I certainly understand why you want him to move on with his life. He sounds like a really great person, and you must be so proud of him.

You should talk to your son, or he might get all worried and come back. That would really mess him up at his school. I've seen it happen.

My son came to pick up his wife and son. He looked at the calender, and he saw that I was scheduled for a hysterectomy a few days after they had to leave for their next post. We just about had to run them off with a shot gun. We told him that I'd do well. He had to check in or be AWOL. Then if I died, he could come home on leave. This isn't even close to what you're going through, but you need to talk to your son-and tell him how important it is for him to go.

Hi! Hope, you are doing well? I have been struggling with my digestive system. Had pancreatic cancer stage 2 b, Had whipple in 2012, delayed gastric emptying after surgery. Was on TPN for 2 months, was eating better. Even thru radiation, chemo, and acid reflux. Than after finishing treatments in aug., I started burning ever time I ate. Tolerated for a long time, than it got worse. Back on TPN, drinking broth and water, My insides are inflamed, hoping this will help me heal. I also, have what they called Gastroparesis, complication after whipple, and acid reflux. I just would like to get back to eating my small six meals a day. I have to watch high fiber, cause my body takes to long to digest. I usually, take 2 creon with my meals, if I don't take enough I get pain in the pancreas radiating to back. I'm grateful that my ct shows no cancer. But not being able to eat is a struggle, only weigh 84lbs, at 5 6. I just have to keep going every day, even when I don't. I have to beautiful grandsons, husband and daughter. God has kept me here for a reason, now he just needs to let me eat. I don't want to die of malnutrition. God Bless!

I'm glad to hear your on antidepressants. I fought it for a while and then broke. It took a little while for me to find the right combination. I feel so much better. Still, I too bottom out at times. I lost everything in the first two yrs, but I have now learned as you and so many put it, I accepted a new me. Still trying to figure out what to do in those moments when I fall into the nothingness.

I can get where your coming from. I am 52, made it thru all my treatments. Finished in aug. Was hoping by this time I wouldn't have gone backwards. I feel like I did after the whipple. Was on TPN for 2 months due to vomiting and delayed gastric emptying. In march I was eating six small meals a day. Eggs, fish, chicken and laughing cow cheese for snacks, but could not gain weight due to eating small portions. Tried every supplemental drink, all they did was sit in my stomach to long. I was better eating food. Still eating thru chemo and radiation, some days better than others, but I was holding my own. Then my body just did a switch a roo, was eating some edys ice cream half churned, then one day I couldn't, it would cause me pain and more bloating. That's when all the burning started in my digestive tract. I see a motility dr. , my test have come back normal. I have another appt. at Penn Med with another gi dr. for second opinion. I didn't survive pancreatic cancer, do die due to malnutrition. It's a fight everyday with my tummy. I just keep going, God has a plan for me , I wish I knew what it was. I have 2 beautiful grandsons and my daughter. My husband has been my rock. Thanks God Bless

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/pancreatic-cancer-endocrine-tumor-net

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter