GregP_WN

Hi Greg. Hope you are having a wonderful day. Have a question. For the past 2 weeks or so I haven't been receiving the nightly updates to my email. I was wondering if these had been discontinued. Thank you.

Vickie

I am really sorry that he lost his battle. This also makes me wonder what can we do to really make a difference in fighting such disease and help spread awareness of how to reach smart decisions in choosing the right path for our treatment. I am glad that your words brought him comfort and cheered him into a fighting mood against his cancer. Though he had chosen the wrong path to deal with it, U still made a difference that might lead you to find answers for many unsolved questions. Best of luck .

Hi Gregg, I've posted 3 videos of a boy named Brendan McFarlane. He was dynamite as a child and teen. Now, I can't seem to find what he is doing now. Would you look for him and send the info to Ivorybjackson46@yahoo. com? If he lives near your area or state, and he's not doing much, maybe you and your band can find something for him. I hope he has moved on with his music. Don't you find him a true "old soul" talent? All who has seen him as a boy, marvel at him. The last I saw of him he was a handsome teen and still talented. I think he was 15yrs old.

Hello. First may I say your journey is amazing and gives courage and faith to me here in month 4. Thank you for sharing even the worse moments as knowing what you have triumphed over gives me hope. Did you find anything helped specifically for the mouth sores? Continued prayers for you and all those on this site.

Hello, thank you for the welcome. I don't have a Facebook so will take me a bit to get acclimated to using this site. It's great to see the support and mutual sharing of resources and information.

Greg, Qsommer34 and I would like to share email addresses, please feel free to give her mine.......Thank you, Chris

Greg, I have another question for you to post.
What are you listening to? I'm listening to a New Mexico cold front come in. At first, it was a slight booming for about 15 minutes. Then the trees began sighing because summer is leaving. We have enough tall trees around where it almost sounds like a pine forest with about a 10 mph wind----I felt good, and the dogs and I went out to feel, smell, and listen to the wind-leaves starting to skittle down the street, fresh air, gray and white clouds galloping across the sky. My hounds are well-behaved, but they seemed to be scenting a thousand things-those noses were going overtime. One more thing, here, many people believe that if you quiet your mind, and be still in the wind, that our heavenly father will speak to us. I feel renewed and happy. My cares were swept away by the wind.

I am back Greg : )

Hi Greg, I have 2 Sicilians (same family), one West African, one Pakistani, one Irish immigrant, one old Jewish doctor, 1 American, and 2 Asian Indians. I traded one Indian dermatologist for the old-fashioned Italian, last month. I managed to get rid of the American PCP for an Indian PCP-and she went to medical school in the Caribbean. I'm so tired of fighting, arguing, going in appt. after appt, or ER or Urgent Care and being told that I'm too dumb or demented to drink water--I'd try to tell them that I had a dry mouth-this was before cancer or radiation-that I wasn't urinating enough, then when I drank lots of water I really urinated. These American doctors seem mad that I got info from the Internet-from my friend---they ask if he's providing medical care-How could he provide me care from the Sudan or Turkey? The only reason it comes up-that on my EHR-the HMO says that I visit the ER a lot. It doesn't say that I have cancer, but I go to the ER- So, of course, I tell them about the black urine and I had to go to the ER to get that documented- to get the HMO to accept that they poisoned me or something happened to me---I had to do that to begin getting basic care for it.

I wanted to go to uruguay, so I could live decently on my social security, many of their doctors are trained in London, Paris, the hague, madrid. Peru is good too. I've had several peruvian doctors that were good. I just got my Pakistani and Indian doctors 2 weeks ago- and they both asked me why I was in the ER so much. I didn't talk about statins. I told them about the dehydration, electrolytes, and salt, and my old boyfriend. They said that he probably saved my kidneys and my life. I usually bury things better. Then I didn't say this to them, but I'm mad that the HMO puts out that I visited the ER a lot, but doesn't say that I have cancer. It's pres in New mexico-- look at Texas pres and the Ebola patient-- Pres is lying when they said their EHR didn't have a problem in saying that he seemed to have Ebola---same chart software that my chart has.

Hi Greg, I know that you try to have some questions-- How about Maniac Monday? What is the happiest thing are you looking forward to this week, the scariest, the oddest, is there something you regularly do that gives you comfort (I know that my neighbor goes for mass every morning at 8. As odd as that sounds, it gives me comfort) Is there a particular person that you see that makes you feel better? For me, and I don't know what category to put it in, but we go grocery shopping once a month. It's from being on distant ranches where we shopped 3-4 times a year, and the list included horse shoe nails, different sizes of horse shoes, 250 lbs of flour, 15 lbs of coffee, you got the idea. Then my son was a ship's cook-where he had to buy for a 100 men for a 3 month voyage. So being a sea cook helped enforce this in my son's hard drive. We just pick up fresh milk and bread, as we don't bake ours anymore. Also we get paid once a month and have a huge freezer.

Today and yesterday I didn't get the WhatNext post. Anyone else having trouble? Can you send it to me?
Thanks, MLT

Was today's WhatNext posted today? I didn't get it yet.

Hi Greg, have you tried a can of beef hash with a poached egg on top to gain weight? Easy to swallow to. I put a half of a can of hash in the pan, crack an egg over it, put a lid on and cook til it's heated up. It's an enjoyable way to eat another egg. The meat and potatoes are about like stiff mashed taters. I don't know if you are looking for some recipes. Then fix a malt- whole milk, malt powder, and a scoop of ice cream.

My main problem is controlling my thyroid. The FDA doesn't approve of some thyroid pills. They pulled mine off of the market. So many people became ill-it also affects a person mentally- I become dangerously aggressive. They started allowing individual pharmacies making pills from animal thyroid. My lab work was all over the place-so was everybody elses. The feds allowed the company to start making this, but medicare and the insurance/HMOs say we can't use it. It's hard to find a doctor that will prescribe this. Then it's hard to find a doctor that knows how.

meanwhile my blood pressure and weight are all over the place

My largest problem are wars on diseases and stuff. You just saw how my body is paying a price because the feds want everybody to take the same thyroid med from one company. We all pay out of our pockets to buy this.

Breast cancer--That's how I got RSD and my husband left our marriage. At the time-the DOD said that my husband would lose his retirement and the family loose medical care if I didn't submit. His job insurance said that if I didn't submit he'd lose the insurance and his job. They botched it. I did get a reprieve from a mastectomy and chemo, even if the biopsy was negative. The main radiologist was the grandson of an LA contractor that was my friend. he was a prisoner in Buchenwald. I was getting set up for the biopsy and I made a comment that he looked like a contractor that lived Brentwood. So he listened to me about the DOD, the insurance, chemo no matter what the biopsy said, etc. He said other older women said the same thing-and he told everybody that the women forced into this died quicker than they would have from untreated cancer. He thought that they were lying-confused, but I was able to tell him that his grandfather was a german Jew, he lost his toes in WW I on the Russian front, and he first entered Buchenwald. My husband had contacted the Navy and his Congressmen here and in Texas. The radiologist got the DOD to stop this inhumane practice. It set off the RSD-known as "The Suicide Disease". The war on breast cancer crippled me for awhile. It cost me my marriage.

Then the War on cholesterol 2011 I joined this HMO-- I kept saying-NO to cholesterol control meds. I wasn't even out of range. The feds said that all older people -especially-those chunky in the mid-section needed to take these meds. This doctor threatened the lose of medical care unless i complied. I was a 135-140 lbs: Because of the war on breast cancer-I believed them. I have statin toxicity. I urinated black, had seizures, it hurts to walk my dogs and I pack my legs with ice, one Achilles tendon ruptured. I've been promised that my kidneys will just flat out fail me in the next few years. Anytime I get the flu or stressed, I get so weak in the hips. Every muscle I have hurts-but I don't have arthritis. Before I got the cancer, I was trying on my own to get my weight down to a 120, so my feet and legs would feel better-but my thyroid was out. How can a person walk or exercise when your lower body is so weak that you almost can't stand up--and battling chronic fatigue? My feet even swelled.

Now to get my BMI like a model, they told me that I had diabetes. I began checking-I noticed the lab work on ons specific blood draw changed 3 times. I copy labs in MS Word to keep track of it. I don't have diabetes. I will continue to have lab work done-- and hope that it's somewhat accurate.

The 30th, I'm meeting a new PCP again. I need to ask her if she'll be comfortable prescribing my thyroid. That sometimes her pharmacy board picks on doctors that do this. That's my main problem in protecting my whole body-BP, weight, emotional stability kidneys, mainly my heart-too low- damage to the main heart muscle, too high, I could blow the heart valves. It controls the function of every gland in my body.

IBS is next-- it doesn't make any difference what the feds say about diet for BMI, diabetes, anything. I seldom eat veges or fruit. If my stomach isn't happy, I will live in the ER from pain and diarrhea. Will she help me keep my tummy happy? Will she believe me that I can't eat sugar or grease-no donuts or french fries for me-ever-

I do not want to be in a war against anything. I don't mind being an experiment, but I'm not a number to be forced into compliance so a doctor can meet his quota. I never signed up for that. I'm supposed to say-NO-NO-

But the current BMI fight-the cholesterol war, and federal edicts about thyroid meds make my battle to have a decent weight and some peace almost an impossibility.

Greg- you seem OK to me. You have the energy to put on gigs, help moderate this site-survive cancer and the treatment. If you don't keep your throat happy, you will loose weight. You won't be able to eat your taters and gravy. Listen to your body.
Some people like Barry have a high tolerance for veges, some don't. With me, it's my stomach. With you it's your throat. Don't let dieticians, doctors, and the "You should do this" chorus nag and hound you into something you can't do. My opinion of Barry Boomer--He's super-human. He has incredible will power and is funny- a good wit, a good man. Greg, you're a good man too, that has incredible will power, but your throat rules. If it goes out, it can kill you. Keep your throat happy.

Hi Greg! Sarah6677 wrote the same exact message ‘private’ message on everyone's Wall, probably including yours. She or he is asking for a personal email to be sent....looks like a scam of some sort! Please do something before somebody responds to this. Thanks again!!!! Lilymadeline

My name is Sarah Sunday, i would love to share some very touching stories in my life and how i overcame it, please kindly contact me via my private email which is sundaysarah8 at gmail dot com.

I figured out how to get a good doctor. This city used to be a Spanish cattle ranch. I used to do contract work-round up cattle, get them in the pens for branding, medical care, separate what they wanted to sell.
There were these pains in the rear kids that would see the horse trailers unloading. They'd wait on dirt bikes in an arroyo or behind trees, and come roaring out and stampeding the cattle, and hoping that someone would get bucked off. We'd give chase, turn their pants brown, they tore themselves up going through cactus and juniper. We'd pull the horses up short, as we didn't want to break their necks like that.

The one on the yellow dirt bike became my dermatologist today. The kid on the red dirt bike has been my dentist for 20 years. The people in the waiting room were in real awe. A real cowboy that rounded up cattle and rode bucking broncs.

Now I need to see if the other brats on dirt bikes became doctors.
For the first time in a long time, I felt safe and relaxed. This guy had seen a startled or rank horse shy and smash my knee and leg into railroad ties, kicked, stomped, and then go to work.

It's so nice to be around people that know me-and don't think that I'm lying or a drug addict because for some reason pain doesn't affect me. That when I say that I hurt, I really, really do hurt.

When I busted my tooth-after a few days i called up---I was in a dental chair in 20 minutes, the other patients just had to wait. This is like the 3rd time in 20 years that I called.

@GregP_WN 'Why do some of my comments disappear after I post them?'

Whether you appreciated Joan Rivers comedy or not, she really was a funny lady!

Joan Rivers Was Once Featured In An Irish Charity Cookbook, And Her 'Signature Dish' -- "Joan River's Toast" Is Amazing! It's a recipe that "had been in [her] family for generations."

To see the recipe, click-on the photo in this this link: http://www.huffingtonpost.com/2014/09/05/joan-rivers-cookbook-toast-recipe_n_5773216.html

Whether you appreciated Joan Rivers comedy or not, she really was a funny lady!

Joan Rivers Was Once Featured In An Irish Charity Cookbook, And Her 'Signature Dish' -- "Joan River's Toast" Is Amazing!It's a recipe that "had been in [her] family for generations."

To see the recipe, click-on the photo in this this link: http://www.huffingtonpost.com/2014/09/05/joan-rivers-cookbook-toast-recipe_n_5773216.html

Whether you appreciated Joan Rivers comedy or not, she really was a funny lady!

Joan Rivers Was Once Featured In An Irish Charity Cookbook, And Her 'Signature Dish' -- "Joan River's Toast" Is Amazing!

It's a recipe that "had been in [her] family for generations."

To see the recipe, click-on the photo in this this link: http://www.huffingtonpost.com/2014/09/05/joan-rivers-cookbook-toast-recipe_n_5773216.html

Whether you appreciated Joan Rivers comedy or not, she really was a funny lady!

Joan Rivers Was Once Featured In A Cookbook, And Her 'Signature Dish' Is Amazing!

She was once featured in an Irish charity cookbook, and the recipe she listed is for "Joan River's Toast" -- a recipe that "had been in [her] family for generations."

To see the recipe, click-on the photo in this this link: http://www.huffingtonpost.com/2014/09/05/joan-rivers-cookbook-toast-recipe_n_5773216.html

Joan Rivers Was Once Featured In A Cookbook, And Her 'Signature Dish' Is Amazing!

She was once featured in an Irish charity cookbook, and the recipe she listed is for "Joan River's Toast" -- a recipe that "had been in [her] family for generations." To see the recipe, click-on the photo in this this link: http://www.huffingtonpost.com/2014/09/05/joan-rivers-cookbook-toast-recipe_n_5773216.html

Whether you appreciated Joan Rivers comedy or not, she really was a funny lady!

Joan's Amazing 'Signature Dish' Was Once Featured In An Irish Cookbook . . .

"Joan River's Toast" -- a recipe that "had been in [her] family for generations."

To see the recipe, click-on the photo in this this link: http://www.huffingtonpost.com/2014/09/05/joan-rivers-cookbook-toast-recipe_n_5773216.html

Has what next ever had a conference or a planned meeting of members to meet and chat etc etc? Lynniepoo and I were chatting and she said it would be so beneficial as well as fun n informative to meet others who are struggling w our cancer. We have formed some friendships and we support and keep up w each other:) it would be nice to meet them face to face. Just wondered if this has been tried through what next or if anybody else has suggested it?!?! Thanks Lynne

Must see! The adorable reaction of the moment a 7-year-old cancer patient Avery Harriman gets the news that he can go home with his family is spreading on the Internet.

http://www.today.com/video/today/55969451#55969451

Hi, Greg. You mentioned seeing the doc today about a persistent cough. How did that go? Thinking of you and saying prayers.

Hey Greg can yo please delete my account..I will be signing back up..I know I will lose everything..Doing some major over hauls with my computer and home life and helping my parents,for the next few months..I will be back tYo can count on that..I love everybody here.sincerely Cathy (me2)

Congrats on celebrating the one year mark! I'm so glad to hear the tests went well. Thank you for all the support, hope, and inspiration you provide to others on this site. You may not hear from everyone that reads your posts, and I'm sure they are thankful to find a connection. Have a wonderful Friday and weekend! -Jessica

Stonewall is negative, no cancer.The vet said that Stonewall was really lucky, because the tumor was between his ribs. It was already spreading and pushing those 2 ribs apart. I'd post a pic, but it just would show him sleeping somewhere else..