EmpathAgain

I'm so sorry. Sometimes I say-I was born alone and I'll die alone. My mother was pretty hateful to me and my brother. I probably would have died as an infant, but my father was home during WW 2. He managed to get injured and was blind in one eye before the war, and he was an Army medic. Anyway- I feel that way. You can talk to me any time, but I seldom check my home page.

Well said about Depression. Thank you for sharing your life.

I have the same thoughts as you .stage 4 also and now have to have fluid removed from lungs,Thursday.. really scared but have been through so much. In 1999 stage 1 no lymph nodes involved then in 2011srage 4 only given 6 months to live thanks to my quack of a dr. I want to scream and cry but everyone thinks I should be brave

I joined WN after reading your pointed and REAL post from a few months back. Like you, I am searching for an site that has real life ideas and experiences. I am on Ibrance & Faslodex since Oct 2017. Suddenly over last 2 mo hair so thin but like someone else, I had a lot so ok. PET scan tomo, 6 mos, and can’t help but worry and wonder - while everyone else seems to say/feel “that’s great”. What???!!! Hopefully it is but sometimes I need to vent, cry, be scared, and be accepted. Will check in later this week when I’m further informed on my status. Meanwhile, big hug and keep the faith.

EmpathAgain,
So much has changed in the landscape of oncology and...so much is forgotten in the landscape of life. There are many new and emerging therapies and for a nurse in this field you can never stop studying or asking questions. However, your greatest weapon is not going to be any drug...standard or new. Your best weapon lies in your own strength. Every cancer is different from the next because they are borne from your DNA. So you can never expect to mirror another's journey...but you are stronger than you can imagine. It is your strength and your will that will pull you thru the rough times. I can help you understand the genetics of the disease and the rationale behind the new therapies...especially the CDK 4/6 therapies like Ibrance, Kisquali, and Verzenio. But never doubt the warrior that you are and NEVER assume that you life will be stunted by time. As for information...especially on emerging therapies, I would suggest that you subscribe to The Asco Post (its free and if they ask you what your role is just say nurse...they won't ask 4 proof), and Cure Magazine. I depend on the Asco Post to inform me on the therapies coming down the pike and how well studies are doing. You can ask Greg and or "tickling cancer" for my contact information. I will always be here...i check this site about 3 times a week, but they know how to reach me immediately. Just reach out if you need anything.

I got diagnosed with bi-polar C after my fight with stage IV HER POS. Infiltrating bc! All the poison and double doses plus the wearvand tear on my body! I'm still not right! So glad I was able to get on meds! I'm a mess without them and I'm on year 4 ofbremission. Pisses me off they weren't giving you meds from the start! Good hospitals have people who know how to get these services covered. I feel for ya sweetie!

I sure am enjoying seeing you participate on WhatNext and reading your responses. You're obviously very knowledgeable and you are a wonderful writer.

EmpathAgain,
I read a recent post you put up with regards to Verzenio. Let me say up front that I am an Oncology/End of Life nurse. I wholeheartedly agree with you with respect to the medical community...it is hard to find a doctor or a nurse who is comfortable with having those conversations. I have had to have those conversations for physicians as well as other nurses...so I understand your view. During the day I work for a major insurance company speaking to cancer patients on the East Coast and then at night I volunteer my services to both National and International patients. The majority of the patients in my care both day and night are a stage IV...powerful warriors who dig their heels deep into that battlefield and swing for the fences. I think you are very wise, wise indeed to understand the enemy you fight and that will take you a long way. I'm almost twice your age and I can tell you that 10 years ago, the landscape for finding an effective therapy to battle this disease was very barren...we have come a long way and I do believe that it will be the CAR-T cell therapies that will change things for the better. I watch those studies overseas and speak with foreign oncologists weekly. I want you to know that you are wise beyond your years...and mighty indeed judging by your post. It is so true that everything we want is on the other side of fear. So if you have any questions regarding therapies or what to expect when your will to live becomes a will to leave...I am here and I would never lie to you or treat you with anything other than my utmost respect. I think it is admirable that you want to contribute in a way that others will benefit from your experience. I wish you the best of luck and just know that I am always here. I stand small in your shadow...you truly are mighty mighty!

Morning! Grandy posted yesterday that she is a 5 year survivor with Stage 4 cancer and doing well. I hope this will give you a ray of hope. You are too young and beautiful to give up your fight. And you are certainly not in this alone. You are surrounded by millions of women that share your pain, struggles and fears, yet have the power to help you heal. Reach out, there really is strength and healing in the love of others. We are only strangers for a moment, until we bond, then we will be forever connected. Right here for you. Jamison

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter