sheri68

Sounds like you didn't get much rest between surgery and chemo! Good luck to you. Is the itching your scalp? I had pain and itching there when my hair was falling out. I used soft knit hats after my head was shaved, and I still use a gentle aloe cream on my scalp. I still have a little itching, but the pain stopped soon after the shaving.

Hope all went well for you. Let us know when you can.

Hi Sheri. Welcome to What Next. There lots of great people. I see you are really new to your diagnosis, so if you have any questions, please use the question tab above -- that way the entire network will have access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

Hi Sheri, I also was diagnosed with ULMS in 2014 a year ago. I started chemo 3 weeks after surgery and also had 6 rounds of germ/taxol. It is a scary thing and i'm sorry that you have to go through this. The emotions are crazy as I'm a pretty even type of person. I have been cancer free for 6 months now. It is possible. It's a LONG journey but we're here for you if you need anything. Take Care

Hi Sheri,
I was diagnosed with ULMS in 2013. I had six rounds of Gem/ Tax chemo and have permanent damage from it. But I'm NED ( no evidence of disease).
I know you must be scared, worried. Understand that there are a lot of LMS survivors.
You had a large tumor. Was it remove whole or cut up inside you? This can change your treatment plan. It is important to see a Sarcoma specialist because LMS IS rare.
I'm here for you. God bless and keep you.

Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter