nursevenner

Activity

  • Lundmusik
    Just got my six month scans. Still clear. Very grateful to my surgeon, oncologist and the rest of the team, now I don’t have to have a scan or visit the doctor for another six months.

    I look forward to hearing wonderful results about your children’s progress.

    Chuck
    October 2018
  • Lundmusik
    Wondering how your daughter is doing with Opdivo. My TF/Mek gives me fevers once in a while and am constantly fatigued. Will be all done middle of May. Only caution is my first full CT three weeks ago (have had a series of Pets that showed NED) showed tiny nodules on my lungs. Oncologist said they could have been there for some time and are hopefully benign. Future full CT’s will record any change.

    You also said your son was diagnosed?

    I hope all is well with you and your family.

    Chuck Lund
    March 2019
  • Lundmusik
    How is everything going with you and your family?
    August 2018
  • Lundmusik
    So what treatment options have been discussed with you for your daughter?
    June 2018
  • Lundmusik
    So your daughter is gene Braf positive? The patient info above says this is unknown
    June 2018
  • Lundmusik
    Welcome—I’m newly diagnosed myself. Please reach out to any of us for help
    April 2018
  • DonnainRI
    Welcome, and sorry about your friend/family member's diagnosis. I am a long time survivor of my first bout with melanoma and a more recent Stage IV with my second round. It is scary but the support here is amazing.
    April 2018
  • BuckeyeShelby
    Greetings. Welcome to What Next. There are lots of great people here -- patients/survivors, caregivers & family. If you have any questions, please use the question tab above -- that way everyone will have access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you and your loved one all the best.
    April 2018
  • SandiA
    Hi! Welcome to WhatNext. I am also a melanoma fighter/survivor. Please feel free to ask any questions. There are lots of great people here willing to help. Sandi
    April 2018
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/skin-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    WhatNext Community Mgr.
    April 2018
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    April 2018