lstlaurent1130

Activity

  • lilymadeline
    Hi! I saw your post about hair coloring, and I just wanted to let you know that I was told to wait 6 months after chemo only because they though that my scalp would be too sensitive for hair color. Usually people get terrible rashes and have super sensitive skin after chemo and you need to wait awhile to recover first. Yes many hair colors do have toxic chemicals but in my case at least they were just worried that my skin was too sensitive. YAY for you if you kept your hair during chemo, and YAY that you were fine with it and didn't get a rash! Go girl!
    July 2014
  • lynniepoo
    I too am glad you found this site. I have gotten a lot of information and help from many suffering from multiple myeloma. I live in a rural part of North Carolina and although I am getting great care there isn't a support group for MM close by. This is in essence my support group. Your story is somewhat similar to mine although it wasn't oncologists who couldn't diagnose me it was the orthopedic clinic who treated my back pain for muscle issues. After 6 months if muscle relaxers, pain pills and physical therapy finally got in to the spine dr who with X-rays found spinal compression fractures and MRI showed spinal rumors. Off to oncologist who did bone marrow biopsy and I started chemo within days. I am doing revlimid maintenance after SCT and the MM is under control. My biggest issue is back pain which is constant which I presume u have as well. My best to you and I would love to hear more of your story since it is somewhat similar to mine.
    March 2014
  • barryboomer
    Have you ever seen this wonderful site AND his facebook page.
    ALSO a great new book RADICAL REMISSON by Kelly Turner PhD....

    http://www.chrisbeatcancer.com/

    Good Luck!
    Barry
    May 2014
  • Ben1940
    Dear sister, i am also a breast cancer patient and my doctor said that i have a limit time to live, so i am in hospital right and my sickness is getting wast and was every time, please i want you to help in a charitable work, please you can fine me on facebook: mrbenschool12

    so that i will tell you more about my desire in the charity work.
    March 2014
  • vcollier
    Welcome! I'm your neighbor in Brenham. I think you'll be very glad you found this group. We attack questions!
    March 2014
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/multiple-myeloma

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
    Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
    Our Help Page with instructions for the site->http://bit.ly/1aR5165
    GregP 3X Survivor
    Team WhatNext Community Mgr
    March 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    March 2014