karen92115

Karen,
I'll be thinking and praying for you on Monday. I hope they can find something that will work within the genetics of the tumor. It sounds like there are some things out there that have worked for some - what little I have read or can find on some of the treatments.
It's so good you have a sarcoma specialist to work with. I hear that's the best way to go.

I'm glad you are feeling Ok through all of this - at least physically. I know that mentally this diagnosis can be crippling. My hardest obstacle is waking up every day and facing this. I have two wonderful and beautiful daughters in college and a good husband and can't imagine them not having a mom around to see them grow. I just can't figure out how to function in the normal world anymore. I have read what I can find about this cancer, but can't seem to find current survivors or current information - it just looks so scary. Maybe I shouldn't be reading too much??

I also know what you mean and the insurance, testing and doctor's appts. What little I have been through so far shows me just a taste of what is ahead. But if that's what is needed to get rid of this cancer then that's what we need to do.

Good luck on Monday. I pray that you will be strong through the procedure and will recover well... then while you are recovering the docs can go to work to figure out a treatment. I just keep thinking of my friend who went through LMS in her leg. It was a long journey of surgeries, chemo, radiation, but she made it after 10 years. I understand hitting the 5-year mark is a good thing. I think you hit that milestone right? It's just a matter of finding the best treatment to kill those lung tumors! It can be done!


Please keep me posted as to how you are doing.

Tammy

Hi Karen, Have you received the results from the scan yet? I hope it will be good news. Please let me know how you are doing. You seem strong to go through all the treatments you've received so far and it's encouraging that they keep looking for ways to squash the tumors. How have you been feeling through all your treatments. Do you find you can carry on your normal routines as much as possible through it all?

I met with my onc. for a second opinion and will go back next week to establish myself as his patient. I had a CT scan and so far the cancer has not spread outside of my uterus. Thankful for that so far. I will be observed every three months and hope for the best. It seems like a relentless cancer. I'm so scared what the future will hold.

Please keep me posted as to your progress. I'm praying for you and others like us facing this challenge. I hope they find something to knock this out of you.

Tammy

Hi Karen,

Keep your faith duing your treatments. I hope they find something soon to shrink that large tumor and all the others too. It can be done.

It's so unreal how rare this cancer is and no one really seems to know how to treat it. Do you have a good support system ... family, friends? I'm glad you are able to work through your treatments - that has to help a little.

I just had my first oncology visit yesterday and was told that my cancer did not spread from the original site, but that there is a 50% chance it will come back. I can either do chemo now or just wait and get scanned every 3 months to see if it comes back. They said there is no evidence that doing chemo will keep it away. Is that what you were told when you were first diagnosed?

We are too young for this and we can beat this!

Hi Karen, Sorry you are having a recurrence, hope you are doing good with your treatments. Best of luck to you

Welcome to this site. The site has helped me to not feel alone in this fight. I have learned that others have the same things going on in their lives.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Hi Karen. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above. That way the entire network will have access & you'll get a quicker response. Likewise, please feel free to browse the questions, as your experiences might be helpful to another WhatNexter. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.

Hello,
I am an oncology/end of life nurse. Welcome to the “What Next” family. If you should have any questions or concerns that you feel that I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

I also have recurrent leiomyosarcoma and about to start chemo again soon. I am a 4 year survivor as well.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter