karen80

Activity

  • country
    hello Karen,
    My husband was in a parp inhibitor trial but found out yesterday it was not working/I do not get used to hearing I am sorry it is not working For me it is as shocking as hearing he had cancer the first time/Trying hard to keep my chin up
    we tried gemzar and folfox and worked for a brief while then the clinical trial we had to be off of all meds for a month to enter trial then 4 weeks on trial and no good results so 8 weeks and there was further progression I was told there is only 1 chemo left ironitican, My husband is 63.What trial is he on,Is it an infusion ora pill? Sounds like you are getting good results, Thank the Lord
    Country
    October 2013
  • country
    Hello from western Pa,
    Was your clinical trial close to you?
    Country
    October 2013
  • stubby
    Jesus loves us !!!!!!!!!!!!!!!
    September 2013
  • Beeps
    Besides Ativan... I get a massage almost every week. I go to a prayer group every week.... During the summer, I've been going to a nearby lake and floating on my float, I like to work in my yard, I'm a piano player..thus playing just for pleasure vs. work... I try to be very intentional about doing things that 'help' with stress... Thus- whatever helps him to relax, encourage it! Good luck!
    September 2013
  • JMS
    Dear Karen80's - Welcome to this site - something of a lifeline for me and others, so hopefully, we can be helpful to you as well. At this point, I can only endorse the advice and counsel that others have already given to you. I too am a Stage IV and still in treatment (that is likely to have to continue until I simply cannot take it any longer). So, I certainly have my own issues with anxiety. But, at the same time, I also know I must remain as strong and positive as I possibly can if I'm to have even a chance of beating this. So, that's my goal and that's what keeps me going.
    Please don't hesitate to reach out to us for help and advice. Courage! JMS
    September 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/pancreatic-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
    Our Pinterest Page with Resources=>http://bit.ly/12qVtEs

    GregP
    3X Survivor
    Team WhatNext Community Mgr.
    September 2013
  • Russ
    It is an honor to have you follow me...it sounds as though your clinical trial is successful to some degree. While you are undergoing treatments it is without question that you will feel fatigued and feel anxiety. Towards the end of my 24/7 chemo for 5 weeks, non- stop, and radiation 5 days a week at the same time I was crawling on my hands and knees until I could get up enough strength to stand up. The last couple of days were spent in bed only to crawl to the bathroom when necessary. It was a struggle... one that you must never give up. Never give up hope, because hope is the last candle fluttering in the dark while all the others have gone out. Now don't give up on the candle of hope...it needs you in order to stay lit. Never, ever give up hope.
    Best to you...Russ
    September 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    September 2013