julieanne

Hi Julieann. Just wanted to check in and see if there was any confirmation on your pathology as to whether your tumor is an oligodendroglioma, Anaplastic Astrocytoma, or a combination of both like I have. Are you taking Temodar and doing radiation? Temodar is my pharmaceutical hero. LOL If you are taking it, I recommend taking it with clear soda like Sprite or 7-Up. I have found it is easier to take that way than with water. It covers up some of that nasty chemical taste as the pills go down.

Hi Neighbor! I'm in Columbus as well. Welcome to What Next. As you've already seen, there are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network will have access & you'll get a quicker response. I notice you're considering hospitals. Even though I'm here, too, I actually ended up w/Riverside instead of the James. For me, it was I started out there and felt comfortable w/the surgeon. Before I met him, I sat there thinking "I need a 2nd opinion w/the big guns". But I met my surgeon, he said "It's nice to met you; I'm sorry you're here". At that point, I knew I had my team. I hope you find the perfect team for you, as well. And I do understand that what you have probably needs a more specialized team that what I have. Wishing you all the best.

Welcome

Hello,
I am an oncology/end of life nurse. Welcome to the “What Next” family. If you should have any questions or concerns that you feel that I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/brain-and-spinal-cord-tumors-in-adults

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter