Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
If you need help navigating the site, please contact me, we are happy to assist. We also have active social pages, you may wish to search those out also. Take some time and poke around the site, there is a world of information here that you will find. The more you dig, the more you will find.
We may have an opportunity for you to make your voice heard by allowing us to share your information with our partner Rare Patient Voice (www.rarepatientvoice.com) and be invited to qualify for surveys and phone interviews for projects that apply to you and if you do qualify you will be compensated on a $100 per hour basis. There are pharma companies that would like to hear about your experiences with certain drugs or side effects. Your information might help develop the next generation of drugs.
Your information is only shared with Rare Patient Voice and is treated with the highest degree of confidentiality. If at any time you want to opt-out of receiving invitations to projects you can do so immediately.
Thank you for joining us, if you have questions please contact us.
Greg_P
4X Survivor
ACS Voice of Hope
0
March 2020
Justin, how are you doing? You asked me what I did to help myself get through. I was pretty weak and did a lot of reading on my Kindle and kept in touch with family and friends from MD Anderson with my iPad. Tried yoga but it was difficult with no strength. Prayer helped and talking about my fears helped. I was lucky to have so much support and a wonderful husband. This was the battle of my life and I won. So will you.0May 2020
Welcome to WhatNext, we are sorry for your need to find us, but happy that we can help you. There are a lot of great people here that have already been through what you are facing and are willing to help you get through it too. If you have questions about anything just post them on the Questions Page. Others will chime in with their personal experiences.
I just want to say things will get better. I am a 15 year survivor of follicular lymphoma, don't know much about T-cell lymphoma, but there are so many new treatments that all lymphoma patients are surviving much longer.0March 2020
