iambammie

Just joined this site tonight and was wondering how your doing?

Hi iambammie: The decision coming from my oncologist was not to bother it, unless it stays out. We will keep an eye on it, is what he's saying. I feel it's sticking out enough as it is. He examined me and made me cough and it went back in. I just don't know what to think. Two out of three says," surgery," what next?

Oh! My hair is thinning more and more each day.

Hi Iambammie: I have several reactions from the sandostatin injections. They are Fatique, Irritability, insomnia,anxiety, pain and bruising at injection site. I think my blood is thinning. Having a blood test soon to see, if it is. I found out my stage, it is stage IV. Wow, I didn't think I wanted to know. Hope all is well with you. I have a prayer jar and everyone's name is going in it by the weekend, so when I say my prayers at night. I will be praying for all of us. Peace, Love and Blessings!

Hi iambammie: I really don't think my doctor has label my stage of cancer. I will ask him next time at the next visit with him. After my surgeries I just follow up with 24 hour urine test, CT Scan every 3 months, blood work every month along with the Sandostatin shot. I know that the lowest dose of sandostatin is 20 mg per shot and that's what I am on. My doctor, said if I continue with the carcinoid syndrome he may bump the dosage up. I just consulted with my surgeon and he found a hernia on my liver and wants to reopen the incision and take it out....Nope not yet! I am having a second opinion on this one. I feel if it's not bother me why bother it. The other thing is that it stick out of my clothes, if I wear something form fitting, which I try not to do. But a girl has to still feel like she looks good every now and then. Lol.

I am doing well. I sometimes get scared, mostly at night, but I am a fighter. I do not think there are a lot of people with carcinoid cancer on this site, but my oncologist states that cases are increasing. You hang in there!

Hi! I am on the lowest dose I think it is 20. Have a great weekend!

I am doing okay. Everyday is truly a gift. Now I am trying to lose weight, which I have been trying to do all my life. You should not feel bad about being on the site. There are not many people who have this type of cancer so I am told, so that may be why it is hard to find others. I am told to live like I have a chronic illness as well. Enjoy the moments everyday!

Thanks for the comment on my new pic

I am sure you will be great! It is just a little overwhelming at times . I try to enjoy every moment possible with family and friends! enjoy your day!

I am doing okay! I am still alive and kicking! The sando is holding things at bay right now. How are you doing?

Hi Bammie. Welcome to What Next. There are a lot of really great people here. If you have any questions, please post them using the question tab at the top of the page -- that way the entire network can access and you'll get an answer quicker. I'm glad you found us but sorry for the circumstances that led you here. I wish you all the best.

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

WhatNexthttps://www.whatnext.com/conditions/cancer/small-intestine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Learn from people who share your diagnosis. You can do this by clicking on the "see more" in the "Who to Follow" box on the right side of this page.

2) See what other questions people like you have, ask a question or share what you have learned. Here is a link to our questions page: http://bit.ly/XrqDMt

3) Keep the WhatNext family up to date on your progress by posting updates. You can do this by clicking the "Share an Update" button on the center of this page.

4) Don't forget to upload a picture!

We look forward to helping you through your journey. If you have any questions, please refer to our help page or email us.

Best,
Your WhatNext Family