dan7264

Hi Dan, haven't heard from you in a while, just wondering how you are doing? Any decision on the maintenance? I get the results of my scan next week and then chemo round 4, that means you are coming up on Round 6! Great.

Hi Dan, round 6 coming up! Congrats! Hope you are having a great week.

Hi, want to let you know that I am finishing up my two year maintenance of Retuxin with the only side affect was tired for a couple of days never aching bones or anything else. My onc had said with stage IV non Hodgkin, which I was, that without Retuxin the ugly would return soon. This treatment was easy for me and supplied drug was pro bono from Genentech. I have one treatment left this Thursday and as of last ct scan the tumor was barely visible. Hope this helps you.

Hi Dan!

I read your answer to Andy's question about flu shots. Sounds like you've made up your mind about not taking the R maintenance. I think you made the right decision.

I had you on my mind while at Mayo and asked the oncologist about benefit and down side of taking maintenance. He wasn't enthusiastic about it. I mentioned that someone I knew was concerned about using up his silver bullet if he did the maintenance. His answer floored me. He said that we've already used up our silver bullet by being treated with it in combination with treanda. He said that it wouldn't work to treat us again when we come out of remission and have to go through treatment again. They'll have to find a brand new cocktail for us then.

He did have something reassuring to say about the T&R treatment though. He said we could look forward to nice, long remissions. I believe this guy. He's published 73 papers on NHL. He has done his homework.

Who know what the new miracle drug will be by the time we need it again.

Round 5! DIE CANCER DIE! Hope you are having a good day Dan.

Hey Dan, how you doing this week? Hope are feeling good. I had round 3 last week and it went well, no fried vein this time! Am going in for a CT this afternoon.

Dan, I don't envy the decisions you are facing. I wish I could offer some advice but you seem to have the pros and cons of both options. All I can offer is to pray for guidance for you. My thoughts are with you.

Hi Dan, how things going this week?

So far I 've had 6 Treatments Rituxin,Cytoxion,vincristine no
Radiation.
I just had a CT scan on 7/30/13 I should know by 8/5/13
how this is working plus they have 2 more treatments for me
to do then they will do a Pet Scan.
As far as the side effects go not much differant...

Round 4 down! 2/3 of the way there, progress my friend! Have a great weekend.

Good luck with Round #4. How many more do you have to go? It seems like you're clicking right through it. You and Andy are my role models. I wanna be just like you guys when I grow up. Of course with the exception of being a dude.

Hi Dan, how your week going? Hope all is well, just finished secound round of chemo, all went well.

Thanks, Dan. Support of kind people like you is helping get me through this. This site has been one of the best finds I could have dreamed of. While we may not all have the same sub type of disease, we are going through enough of the same things that we can lend support and advice to each other.

The significant other's attitude has improved today. I had to sit him down and tell him that I need his support right now more than ever. It took tears and gut wrenching honesty but I think I got through. I hate to resort to being such a girl by turning on the waterworks but sometimes that's what it takes I guess.

I admire you so much in your attitude. I hope to get there soon. You're so fortunate to have a significant other there to support you. Mine won't even talk with me about it. It is scary as hell going in for treatment alone and then being dismissed when I don't feel well after. Ok, enough whinining. I've learned to do a lot on my own. I'll just add kicking cancer's butt to the list.

Hey Dan, hope the scan went well. Got my fingers crossed for you.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymhoma-nhl

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Follow Us on Twitter Click Here =>http://bit.ly/XExkce
Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl

GregP
3X Survivor
Team WhatNext Community Mgr.

Hi Dan. I noticed that you had asked about posting pictures. If you'll go to the "pinboard" tab at the top of the page, you can post pictures there. People post all sorts of motivational or fun things. Or share themselves in various parts of treatment or, better yet, the completion of treatment. Wishing you all the best!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Hi Dan - My husband was diagnosed with Lg B-Cell Lymphoma in Jan 2013 - done well for the most part with R-Chop through 1st 3 treatments. Then developed pneumonia in April and again in June--hospitalized 2 weeks last time. Anyone else get pneumonia? He's being much more careful now -- no work for next month, eating healthy and getting lots of rest. Only one more chemo treatment but can't do it until pneumonia is completely gone. We're so ready to be through with this and move on with life!!

Last Pet scan showed 90% clear!! Yeah!

welcome to WhatNext. I'm sorry you needed to find us, but now that you are here you will find the greatest bunch of supportive people whose combined knowledge is awesome. We can answer your questions, hear you vent and celebrate good news with you.

Thanks Dan!