amymor74

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/esophageal-esophagus-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

I am an esophageal cancer stage III survivor of 15 years. We created the Esophageal Cancer Education Foundation www.fightec.org in part to help patients with their journey through this disease.

We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and you can get at any book store.

We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that you can get at any bookstore or on our web site www.fightec.org

We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue. Go to www.fightec.org and click on services to get more information.

We also have a 24 hour hotline to help with quality of life questions as well. We have a You Tube Channel https://www.youtube.com/channel/UCDkh7_H9BOnNASdmG4pdF0g . If you subscribe to this channel, you will receive notice each time we add a video about esophageal cancer to it.
Good luck
Bart

How can we help you and your loved one. Please continue to fill in your profile so we can get to know you and your loved one better.

Hi Folks
Don't be bashful hop on board, here we go some of us have been riding for a long time and as for me I am not getting off until the Lord calls me home. Once you get seated I am sure someone can help you along the way.
What is your diagnose and staging we have all been here at this very spot.We all have had different and unique experiences so I want you folks to feel at home, open up and let us know how we can help.
Now I will tell you a little about my journey I had the normal tri-modal procedures, Chemo(5FU/carboplatin), 5 weeks of radiation and MIE esophajectomy. I am a 77 year old EC survivor in remission going on 14 years stage T3N1M0.

Billy22

HAPPY MOTHERS DAY TO ALL MOMS OUT THERE.

Hi Folks
Billy again. My T3N1M0 staging, tumor had penetrated 4 lining of esophagus and 2 localized nodes at the GE junction. I had my operation at UPMC by the surgeon who pioneered the Laparoscopic Esophagectomy (MIE).

Let me correct my age I am 79 (2-12-1937), diagnosed in 2002 at 65.

I always suggest a second opinion and a surgeon and facility that performs the (and many) MIE esophagectomy.

I have known of patients 80 and over going all the way and it sounds like he has no other health conditions and a positive attitude it will be his decision. We will be praying about that PET scan.

Sounds like family and you are in there to help him along the way, he needs this encouragement, good job folks.

A survivor Billy22

Billy again, Well since you just hopped on, one important thing you need to do is get a report from each visit to the Dr. you make. When he gets a pet he is due a copy of the scan and report, but you have to request all theses reports and scans, they are glad to accommodate you.
You are paying for them so get them in case you want to go to another city out of network or what ever.
Keep good notes also. Waiting on good reports from you folks

A Survivor Billy22.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter