semperfi524

Activity

  • papabill
    Thanks SandiA for checking in with me. At this juncture in treatment your support truly means a lot. Tomorrow (Tuesday) I will be first meeting with the radiology oncologist to learn about incorporating this into my ongoing Keytruda infusion therapy. I believe the type of radiation planned will be proton beam. Adding this to the protocol is in the hope that the radiation will be able to destroy the growing malignancy on my liver. As it appears the Keytruda is working on any melanoma cells else where, but on my liver. We'll hope and see, as we all must keep the faith. .
    April 2018
  • papabill
    Hi semperfi…as with yourself I was initially diagnosed just over two years ago with melanoma on my scalp that was surgically removed. For two years scans came back clean, then just this past January CAT showed melanoma had appeared on my liver (confirmed via liver biopsy) and again on another area of my scalp and now have been diagnosed as Stage IV metastatic melanoma. I began treatment immediately in January on Keytruda, once day a week, every four week. Just completed my first round of infusions and tomorrow (Tuesday, April 10) will be going in for a full body CAT and brain MRI. To tell you I am anxious is not telling you anything you cannot relate. This will set the course for what is next. I hope both our journeys results in successful outcomes and we should stay in touch to support each other. Keep the faith. Semper fi
    April 2018
  • papabill
    Hi semperfi - I have now completed my first four Keytruda infusions and had so far have not had any side effects. I keep asking, "am i getting saline or Keytruda?" The issue is that while the Keytuda appears to be showing some effectiveness as no new tumors have appeared, it has had no effect on the tumor on my liver, which has grown considerably since initially found. So, now they plan on incorporating radiation to try and destroy the tumor. Will be meeting the radiology oncologist to learn about this inclusion. I believe they are considering proton beam radiation. How goes it with you and your treatment as being ale to "talk" with you helps keep my trying to remain positive as we strive together to keep the faith. semperf!
    April 2018
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/skin-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
    Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
    Follow Us On Instagram=>>http://bit.ly/1pF5yh0
    Our Help Page with instructions for the site->http://bit.ly/1aR5165

    GregP 3X Survivor
    WhatNext Community Mgr.
    April 2018
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    April 2018