chaffinch

Susan,

Thank you for your recent post on my wall. You seem so positive and knowledgable about what you are facing. I really want to get on acor.org, but have not gotten my approval email to join yet. I'm anxiously awaiting to see what's there for lms patients going through treatments and survival.


I'm glad to hear that some of your returning tumors were eradicated by the chemo - that is encouraging. Tell me how you are feeling now. You said you have one large tumor that you will be receiving radiation. Have you started radiation yet or surgery to remove the tumor. How are you managing with the recurrance in your daily life? I'd like to know your updates if you wish to share as strength in numbers always helps - as far as support.

I wish I could find other survivors of this cancer - especially very long-term survivors- to show it can be done. I live in Ohio and seeking all my support from the James Cancer Center at Ohio State University where there is some sort of sarcoma program - not familiar with it yet.This is all so new and I've only had one appt. to tell me that I have this awful disease. My follow appt. is soon. I will ask questions based on some of the info. you shared in your last post - that helped immensely.

Continue getting stronger and better. I hope to hear from you again!

Hi Susan,

Thank you again for your recent post on my wall. You sound so positive and knowledgeable a

Thank you for the info. on acor site. I will try to get on it. It is hard to find information at all about this cancer.
I was just diagnosed with stage 1 lms after a hysterectomy for what was thought to be fibroids. Told that it's a flip of the coin to do chemo right away to just wait and observe to see if the cancer comes back because for now it did not spread anywhere else so far. Also told that there is no known evidence that doing chemo now will prevent the cancer from coming back. It's so hard to know what to do. What have you been through? Were you told simiar info. when first diagnosed?

I have an attorney who is interested in helping those who have been affected by sarcoma spread my morcellation. If you would like his contact info let me know. I see all emails are blacked out by the site

Yay!!! Happy to get your response - good news! It would be wonderful to be able to have surgery to remove this "alien"! Actually, I'd be happy to have "most" of it removed, but the surgeons will not consider that - at least not until it would be immediately life-threatening not to reduce it. Anyhow, I'll keep the faith - thank you!
And my best wishes to you!

Sending prayers. I have surgery scheduled July 10, after it, the active treatment you are receiving. Would you like a friend?

Hello Chaffinch, Welcome to What Next! Everybody here is incredibly supportive, comforting and cares about each and every member. Happy to have you part of the family.

Hello chaffinch, and welcome.

My Dearest In The Lord Jesus.

Greetings I am Mrs. Ava Denzel, from Kuwait. I am married to late Mr. Valasca Denzel,who worked with Kuwait Embassy in Cote d'Ivoire for Twenty-Sixyears before he died in the year 2011, after a brief illness that lasted for only 2 weeks.

I am an ageing widow suffering from long time illness. i am currently admitted in a privet hospital in Cote d'Ivoire i have some funds I inherited from my late loving husband Mr Valasca Denzel, the sum of (USD $5,Five Million United State Dollars) whichhe deposited in one of the famous Bank and I need a very honest and God fearing Person that can use this funds for The good work of God's to help the charities, and 20% out of the total funds will be for your compasession for doing this work of God.

I found your email address from the Internet and decide to contact you.Please if you would be able to use these funds for the Lord's work kindly reply me.

Thanks for your co-operations
Your Sister In The Lord.
Mrs Ava Denzel.
Email_mrs_avadenzel@yahoo.co.jp

Hi Chaffinch. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab near the top of the page -- that way the entire network will have access & you'll get a quicker response. I hope you find this site as helpful & supportive as I have. Wishing you the best.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Welcome chaffinch. I'm sorry for the circumstances that led you on this journey, but glad you found your way here. Cry, whine, vent, ask questions…whatever you need. There are caring people here who want to help support you. Take care.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter