absencep

Hello, I had Large B Cell Lymphoma double hit, and I see they have used the new CAR-T Immune Therapy to successfully treat WM, so might ask your doctor about that, or find a center that does it. Here is the Article I read on that:

https://www.cancertherapyadvisor.com/home/cancer-topics/hematologic-cancers/waldenstrom-macroglobulinemia-benefit-cd19-targeted-cart-therapy/

I was stage IV, and was treated with CAR-T after two failed chemo treatments and I have been in remission going on three years now. Note that they were only offering CAR-T at some of the larger teaching schools when I was treated due to it being so new. I had my treatment at KU in Kansas City. Sending Prayers your way, try to stay positive and don’t give up. Steve

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/non-hodgkin-lymphoma-nhl

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Follow Us on Twitter Click Here =>http://bit.ly/XExkce
Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
Our Pinterest Page with Resources=>http://bit.ly/12qVtEs
Follow Us On Instagram=>>http://bit.ly/1pF5yh0
Our Help Page with instructions for the site->http://bit.ly/1aR5165
GregP 3X Survivor

I am sorry you have been diagnosed with cancer, but i am glad you found us here on WhatNext. Please feel free to ask any questions you may have, share triumphs or experiences, offer support to others, or participate any other way that fits your needs best. We welcome you!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter