Tinnieval-165371

My sister-in-law has a rare form of Leukemia. She is now ten years beyond her "expiration date"

I have APL. I was diagnosed 12-13-2012 and in remission 1-8-2013 after 23 days inpatient. My last ATO was 8-2-2013 and ATRA 8-18-2013. I have not had a fatigue issue since earlier in my chemo, but being retired doesn't require me to face working every day. I am in a study at MD Anderson in Houston, and a surveillance bone marrow aspiration in November shows me still in remission. Would love to hear more from you. Somehow I didn't find another APL patient when I was struggling with chemo and felt so alone except for my wonderful husband. Nice meet you.

My heart goes out to you. I hope all goes well. I stay happy after listening to my "church songs" and other favorite songs, my grandmother once sang when she did her daily chores. You Tube has every song I've looked up. I transfer these to my Mp3 Mp4 player and take the player to treatment with me. Each morning after I talk to God, I play uplifting songs. I'm not the quintessential religious person, but God has brought me my knees once before. If you don't mind, go to You Tube, a listen to a song titled "BROKEN' by Shekinah Glory Ministries. It's about a person who is distraught and doesn't know where to turn. At the end God says "I've got you just where I want you, now it's just You and Me, now there's a lot that you can do for me, now that you're broken." I concentrate on being a living testimony.

Hi Tinnieval, just checking in to see how you are doing now that treatment is done. Hope you are regaining your strength. I have 2 more treatments to go. Catch you later....:)

Hi Tinnieval, Sorry I am just responding to you now, 3 days later. I did not get fibromyalgia from the cancer or from the treatments. I have been dealing with it for about 30 years. They didn't even know what it was back then. It is better on some days than others but I had to stop working because of the bad days . They are coming out with new meds all the time so hang in there. Best of luck to you......:)

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter