Penny82

Hi how did your treatments go? glad you finished. I will be starting treatment in 7 wks, was told I will be put on:Chlorambucil,rituxan, Gazyva, ibrutinib & maybe Bendamustine, not sure if I'll have side effects, really scared & nervous and have no friends to go w me. I have no family where I am. Feel free to message me. Thanks Pat

Thank you Penny.. thankfully radiation is out.. just doing seeds via recommendation from Sloan Kettering. WHOA!

Our Blog Post today is from WhatNexter @Penny82. She is a Radiation Therapist and this is a look at fighting cancer through her eyes, from the other side. Take a look here>>http://bit.ly/1KHWliM - See more at: https://www.whatnext.com/media_posts/45963/feed_item?hide_more=true&utm_campaign=Notify&utm_content=Comment&utm_campaign=website&utm_source=sendgrid.com&utm_medium=email#sthash.lyOGoM23.dpuf

Hi Penney82, thanks for the great answers you post on radiation! I just saw our radiology oncologist today, and she has said that hypo fractionated treatment of 15 sessions would be right for me. It might also involve axillary zapping, but I'll find that out after the onc committee meets. As a professional, do you have an opinion on hypo fractionated radiotherapy? Are the side effects worse? The studies I've seen seem very positive, but your real life experience would be useful! Thanks.

I just read your profile, just like your husband, i too was diagnosed at 19 and had a bone marrow transplant (as well as other treatment. My story is in the blog section, archive January 2015, if you are interested in reading it.

Hi Penny,
I read your answer to lost question. i understand, i too was unable to have biological children. i also spent too much money and time in fertility treatment. My wife and i changed direction and adopted 2 children from korea, it was the best thing i ever did.

Hi Penny. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network will have access & you'll get a quick response. Likewise, please feel free to browse questions as the experiences of you and your husband might help another WhatNexter. I'm glad you found us but sorry for the circumstances that led you here. Wishing both of you all the best.

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/leukemia/chronic-myeloid-leukemia-cml

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter