MarnieC

I read an earlier post where you said you had information on acupuncture for neuropothy. I'd love more information.

Hi Marnie I am stage IV breast cancer. Diagnosed about a year ago and am HER2 positive. I would like to read what you have on your website. If you could provide me your website info I would appreciate it.

Hello. Another whatnexter just gave me your name and tells me you have a blog? Can you direct me to that site?
I also have the "Eat Right for Your Blood Type" and I also have "Kickin' Cancer in the Kitchen". Am not adhering to either one at the moment but am eating green and whole. And try to stay as alkalinic (is that a a word?) as possible. I am interested in finding out some natural/homeopathic substitutes for hormone blocking therapy. I pretty much know what not to eat but what can I add to help?
It's always a thrill to meet someone who is so articulate to relate their side of the story. Thanks for being an inspiration.

Hi Marnie,
Thanks for your reach out. It is wonderful to get in contact with a long term survivor!
I'm doing okay. I'm a psychiatry 1st year resident and was so used to being able to do my 80 work week without too much problem. The AC has redefined what a full day is for me. The fatigue has been the worst. I am a single mom - my daughter is 12. She has been incredible during all of this.
What has your follow-up been since finishing your chemo? I just read a news release where I work that they have released for use a blood test to monitor for breast CA recurrence. Have you heard about it?
What regiment were you on? I'll be on AC/T then tamoxifen for 10 years. After chemo, I will have a hysterectomy/oophorectomy to decrease the risk of cancer in those given the tamoxifen.
How are you now? Your picture looks great - very inspirational
Thanks for being there for us newbies!

Just saw your answer regarding letrozole. I am also on letrozole and am interested in looking at your website. I am a 28 year survivor with a recurrance last fall (came back in my lungs). My dr. feels blocking my estrogen is enough for now. I need to learn more about what I can and should be doing to help myself Thanks, Del

hi Marnie, i would love some information that could help me with my immune system. as of yesterday my throught feels scratchy.drinking plenty of liquids. even hot tea with a peppermint in it.after being hospitalized with pneumonia the end of 2013 into 2014.everything makes you double look last month i end going to the emergency room. no double pneumonia again. my primary insist when i had no energy and every breath felt like cold air in or out.but i am ok i take my vitamins and drink plenty of water.

Hi Marnie thanks for your response. I would like to see your website. I spoke to my dr and am going down on the Zoloft in hopes of coming off it completely. Thanks for reaching out to me!

HI MARNIE HOW ARE YOU DOING?

Yes I know about the website and I am a member of https://www.facebook.com/groups/inflammatorybreastcancer/ also. I know you too!

Hi Marnie, thanks for the post. I had 3 positive nodes at surgery so after I finish radiation, I decided to go for a clinical trial that used Cisplatin and a PARP inhibitor. It was 9 months additional treatment and took me to May 1, 2012. So far so good. I have a check up next month.

is it normal to still have emotional days

Hi Marnie....yes please send your link so I can why you made your decision. I think my test will be back the first part of this week and want to have information in my mind to back up my decision.........I agree with you, chemo and oncologist are icky words.

Marnie I would be glad to share what I am doing but please keep in mind that I stay just as confused about things as most. I wanted to incorporate a natural approach to my treatment. I am on Arimidex and had 6 rounds of ATC...no radiation. There is not a naturalpathic practioner in my area so I did Internet surfing. Plus my daughter bought me a copy of Kris Carr's book " crazy sexy diet". Basically, I have turned to juicing. I use lots of green leafy veggies as base and go from there. I drink 32 oz daily. I also have greatly reduced the intake of all meat except seafood. I do consume animal products...eggs and cheese in limited amounts and from local farmers. No factory farms. My cancer markers have returned to normal. My liver lesion has shrunk a centimeter. I am no longer diabetic and my lipids have returned to normal. I am feeling great and have more energy than I've had in awhile. The fog is lifting from my brain. The Arimidex makes my joints ache but at 70,I can live with that.

I will be happy to share with you what I am doing. I really don't know if its the plants or the Arimidex . But do feel good .

Marnie had a question to ask sometime can we exchange emails i lost yours!

Hi MarncieC,
My answer on surviving was optimistic. My husband stole our kids as soon as my diagnosis was made, then divorced me as soon as decently possible after about 6 months of cruel mind games.
When I got back to the mainland to be close to my kids, he began the process of trying to make sure I'd never see my kids again.
My parents and my friends (none of whom live nearby) are always available by phone and I happened to find a great neuro oncologist in my city.
Right now I pray, take public transportation most everywhere, and look for jobs. If you are religious at all, look into St Peregrine - the patron saint of cancer victims.

Hi MarnieC.... I'm just getting into this after initial signup months ago. Thank you for the article you sent. Very interesting. How are you doing?

Hi Marnie thanks for ur kind and welcoming words! This all being so new and frightening,I could use all the help and support I can get. Please send me the address of the website u referenced. I'd love to check it out. Big hug from GA!

Hi Marnie. Yes, I'd like your notes! sheila.m.hunter@comcast.net

I am so pleased that I found this site. It has surely been the light in an otherwise "difficult" day. No biggie, I just fasted and gave 20 vials of the red stuff. But since I'm not too hungry right now it's easy (to Fast). Thanks for reaching out to me.

Marnie, Thanks for following my page. I am going to look at your website. I love guided meditation! Elsabe

Hi Marnie

I have now sorted the links out.

Steve

Hi Marnie

I have added a page to my blog www.cancer-stress-healing.com for links that in my opinion are informative and safe. I am feeling a little tierd and as this is the first site I have ever attempted I will add some links tomorrow.

Steve

Hi Marnie

I hope you are well? I have given out some links to your site because of the information you give to people is of high quality. I am looking into adding a page to my own blog to point in the direction of your site and WhatNext becuase I beleive we can nerver get enough quality support and therefore should seek that support from all those places that are safe to do so.

Steve

Hi MarnieC,

Yes, they started me on Herceptin while I was going through chemo in Dec. 2009. There were a couple of times I didn't receive it so I finished taking it in January, 2011. I feel like I'm doing well for everything I've gone through, thanks for asking!

Marnie,
You said you may have an alternative to Tamoxifen, can you elaborate? Thanks, Dee

HI Marnie, thanks for your post to my wall. Not sure what you want me to say. I am not sure I know the specific type of bilateral mastecomy. I believe I have my muscle wall still. My Mom and her sister both had breast cancer and I believe a great-grandma also, so I had always felt I would probably end up with the same diagnosis. I had tumors in both breasts, one almost at the chest wall. I could have done the lumpectomy, but I had always said that if they found something, just take my breasts. It was just skin, my breasts are not who I am. That being said, I never worried about the operation. But I had never had a 7 hour operation before. I woke up in step down ICU, the pain was almost unbearable. I was in the hospital for 4 days. The good news was that the cancer had not gone through the lymph nodes. I was a very large breasted woman with very dense breasts. I chose to have the reconstruction, while still on the table. I was not prepared for what I saw when the bandages came off. That was the only time after the surgery that I cried. For me recovery was really hard. The flaps on the right side started dying, so 2 weeks out from major surgery, I had day surgery to resection the tissue. About a week later, after the drains came out, I started leaking fluid under my right arm so I had more surgery to sew it up again. Resonstruction process had to wait until we knew if the right side woudl heal properly. My plastic surgeon told me this could happen, you know everyone if different. I chose silicone implants which were done 6 months later. My plastic surgeon said I would loose about 60% of my original breast size in each breast. They did not make implants my size! Due to all of the extra surgeries, my right breast is smaller and lumpy. I can go without any type of bra, they are so small now. But I did go and have myself fitted for prothesis. As soon as I tried the 1st one on, my self esteem went through the roof. I am really glad I chose to have the mastecomies, my original diagnosis was invasive ductal cancer, the pathlolgy results came back with additional diagnoisi of lobular in situ. You know with the prothesis, no one knows that i had mastecomies. I have never second guessed my decision, I believe it save my life.

Thanks for input, Marnie. I DO the manual lymph node drainage routine...it's on the internet and I checked several sites to confirm the methods.

I would do yoga, but it just totally gives me the giggles...especially when someone passes gas! I know it's immature, but I'm only 59...maybe I'll "grow up!" sometime?