Maret

Activity

  • macfightsback
    Hi Maret,
    Lynne-I-Am's post got my attention. I have stage 3C Ovarian Cancer and I am a nurse, diagnosed in 2015. A weight loss of 17 pounds in 21 days is very concerning. I was on Taxol and Carboplatin initial chemo. Most food had no taste. ( I had been warned to use plastic utensils not metal ones due to the metal taste.). I could taste pickles and chocolate. So I would eat pickles before the foods I could not taste and it helped stimulate my appetite. Chocolate candy was my go to treat. You may have certain foods you can enjoy. A friend with cancer said Chocolate and Yogurt were her go to foods. During my reoccurrence last year I tasted metal in my mouth even if I was not eating sometimes. That chemo was Gemzar and Carboplatin. Lynne-I-Am is correct about better medications out there for nausea. If that is a problem, I would talk to your Oncologist about more options. I was malnourished before surgery and chemo so the Oncology Nutritionist put me on a high protein diet with 5-6 small meals per day. You will need protein to heal. Most Oncologists prefer their patients do not lose weight during treatment. It is important for you to know people who have great weight loss during treatment do not do as well as people who.have a stable weight or gain a little weight. A nutritionist consult may be helpful. If you can tolerate full liquids, milkshakes made of a nutritional supplement like Ensure, ice cream and some protein powder thrown in a blender may be an option. I hope this helps. If I can answer any other questions or concerns let me know. I hope today is better than yesterday.
    March 2019
  • carebear55
    Hello Maret....why I asked is yes the neuropathy and I have it in both feet and hands. Nervous system damage, lining of stomach damage (it has healed by itself). Brittle bones, I have broke my leg and a year later broke my ankle in three places. The worst is only half of my heart works. I went into congested heart failure a year after they stopped the chemo early. My heart problems are because of the red devil. My heart was checked before I was given chemo and it was fine. I take 26 pills a day 24 are because of the red devil. I get a shot every six months for my bones. Red devil is the only chemo I had. I am one year older than you. They couldn't correct my heart with medicine so I have a difibulator and a heart monitor by my bed. If I have to travel I have to take my heart monitor. I am one year older than you. It has been a long difficult road. It will be three years in July since the chemo was stopped. I am just now starting to feel better. Yet every day is a challenge and I get exhausted easy. I wish you the best and pray your chemo health is a minimum. Thank you for writing...I wondered how you could contact an individual. Please keep me informed with you progress.
    March 2019
  • Gabba
    Google "TLC wigs, American Cancer Society" to find all kinds of products reasonably priced...good luck.
    March 2019
  • Lynne-I-Am
    Sorry about the misspelling of your name- blame it on spellcheck.
    March 2019
  • Lynne-I-Am
    Market, saw your answer about chemo prior to surgery and wanted to connect. I lost over twenty pounds prior to my chemo because of the cancer. I was not on the same chemo drug as you but on another potent one Cisplatin , one of the cocktails used for ovarian cancer. I understand everyone is different with side effects and I am sorry you have had such a loss of appetite. I do not know if this would be a help but may be worth mentioning- besides the routine anti nausea meds. I took, my doctor stepped it up a notch when I started on Cisplatin and ordered Emend. This may be a possibility for you. Loss of appetite can be a precursor to nausea. Emend is expensive and not all insurances cover it but thought it was worth mentioning. Also, I actually gained weight during chemo because of my craving for potatoe salad. It was Dec., Jan. and my husband was able to find some potatoe salad for me . Other than staying well hydrated , I was never restricted on food intake but , as you may know, chemo effects your taste buds. Some foods had a metallic taste so I stayed away from them. Using plastic silverware did help some though. I hope you will be finished with chemo soon and regain your strength back. Fatigue was my biggest side effect. Wishing you better days ahead and success in kicking cancer to the curb.
    March 2019
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

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  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    January 2019