Hflores

Activity

  • Lundmusik
    How is your treatment going. Hope all is well.
    October 2018
  • Lundmusik
    Which medications made you sick? What are you taking now? I’m Braf mutatation like you and am one week on tafinlar/mekinist, no side effects so far. How are you doing?
    May 2018
  • GregP_WN
    Good Morning! We hope you're doing well today! First, thanks for being with us and spreading the word about melanoma, too many people think that "it's just skin cancer". And second, I can give you a little larger platform to share your story on if you would like. I feature one of our members once or twice a month in an article on our blog. We reach around a million people a week with our website and all of our social media.

    If you would like to be my feature this coming week, I would like to have you write out your story, just like you would be telling it to someone in person. Cover these things as you write, kind of like you would be answering someone's questions.
    How did you find you had a problem?
    What was life before melanoma, and how does it compare now?
    What was/is your doctors plan of treatment for you?
    How much treatment, surgeries, etc. have you been through?
    What has been some of the lowest/hardest parts so far?
    What are some things that have been positive?
    What is your current prognosis?
    What is your long term plan for treatment, if it's going to be maintenance?

    And lastly, how did you find WhatNext, and how do you feel it helps you to be here?

    If you want to do this for me, just type it up in a word doc and email it to me at greg @ WhatNext . com and I will put it together and share it on our blog page and all of our social media outlets.

    Also, it's great to have some pictures before, during and after treatments, but I know you're still in treatment, so any would be good. You can include just you, or with family, whatever you like.

    Let me know what you think and if you're interested. This being melanoma awareness month it would be a good time for this.

    Thanks,
    Greg
    May 2018
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    May 2018
  • SandiA
    Hi! Welcome to WhatNext. I am also a melanoma fighter/survivor. I read your story on your page and I want to say I am so sorry for all you are going through. I am here anytime you have questions or just need to vent. There are lots of great people here willing to help. I am glad you found us. Reach out anytime. Sandi
    May 2018
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/skin-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

    Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
    Find Us on Facebook Click Here =>http://on.fb.me/zjBAPl
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    GregP 3X Survivor
    WhatNext Community Mgr
    May 2018