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Hello whatnext community. It has been 5+ years since I posted. I have been well. I just finished with a clinical trial. I did 12 months of chemo and been on Revlimid since 2016. The trial has ended and now need to decide (with the Doctor of course) what will be my next plan. To continue with Revlimid is very expensive, though right now I am on a program that is paying for the drug. Is there anyone else out there that has been doing Revlimid therapy? How long have you been on it? What side affects you have had? My biggest problem was diarrhea. I just turned sixty and have had some problems with low energy but I don't know if it is from age or the drugs. My cancer is Follicular lymphoma with R-chop as my first treatment then 4 years later (3 years of remission then a year watching and waiting). I joined the Revlimid trial and did a year of chemo and the Revlimid until this past July. What is anyone else's experience? I am every grateful to have 12 + years living with this disease and appreciate that I have had good quality of life. But What Next? I appreciate any comments.
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CakeLady earned the Combo Breaker badge.Earned badges for 5 different things in one day (now you can say it was 6!).August 23 -
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CakeLady earned the Ancient Membership badge.Nobody remembers a time when this person wasn’t a member here.August 23 -
Check out The China Study and this site below..
http://www.chrisbeatcancer.com/faq/
You MUST change radically. You're either IN or OUT....can't have half way measures.
Good Luck!
Barry0December 2013 -
Hi Cakelady, that makes me hungry, you must bake cakes......OK, anyway I sure hope you got some pictures of you and the MIL in the Hot air balloon, if so please post some on the pinboard.
Thanks0September 2013 -
Hi; Lifestyle changes aren't one size fits all. Ours lives change tremendously when a part of us is taken away. You might find that yams (cooked or uncooked) are very helpful .. if that works, you can add a lovely tea made of red clover .. if that works, visit my gf Dinah (www.dinaheverettsnyder.org) and try her "Raw Beauty Oil" which does amazing things. Blessings0July 2013 -
Hi CakeLady! .. It seems I gave you an incorrect link. Perhaps try: http://www.facebook.com/groups/359670140790634/ or: http://www.facebook.com/pages/Kathys-Raw-Deal-Journey/220318181426978 or some recipes I did for the Living Nutz Company: http://www.livingnutz.com/2011/09/living-nutz-sage-walnut-pesto/ where there are several.
It will be tough for you but not impossible. Rome wasn't built in a day and you did not get sick in a day. If you can possibly replace some meats with sprouts and green leaves and exchange some store bought sugars for whole fruits and such, you will be making inroads to reversing a life long mistaught way of eating. The less industry has to provide, the happier is is with its profit. The more whole food you give to your body, the smoother your engine will rev.
One lovely sprout salad more is a victory. Almost no one goes "all raw" overnight. It can be as gradual as you desire. Once you start to feel improvements, it will go a lot easier. The one thing you can know for certain is that eating whole food can in no way shape or form hurt you. The more greens you imbibe, the better you feel. Start with green smoothies daily for a week, perhaps. Most folks get a burst of energy after such a drink. Skip a day after the week and you will see an immediate depletion of that energy. Because you/me/we have been sick, we need a lot more nutrition to satisfy our needs of getting near "up to par". Heck just one little daily change can make an amazing difference.
Where is the harm in giving it a try? This is about you and not your work or your family. Baby steps, one at a time. If it helps, then you can go to step two.
Hang in there.
yours with best wishes for recovering vibrant health.
BTW, have you ever heard of Essiac tea?
Cheers0November 2012 -
Hi CakeLady. Just a little more on your question. The reason I am following a diet from my nutrionist and approved by my cancer team is that I am now being treated by a pair of licensed MDs who are also licensed naturopaths. They use alternative natural trearments for all diseases including cancer. They have a nutritionist on staff who uses natural healthy food based diets. She and the drs have developed a diet for me that aims at restoring my immune system to enable my body to defeat the cancer. They all believe that diseases are the symptoms of a compromised immune system and that our diet is at the root of the problem. I think the same way, so I have decided to go this route. I am not recommending this for anyone except myself. It is a personal choice. Will it work? Time will tell. It won't be easy to change your diet, but well worth it. I am trying to get my family to change their diet to the one I am on, but it is hard. My diet is basically raw foods. Geekling is a good source of information on raw food and I have ordered her book. I am looking forward to using it. Just one word of caution. Your insurance may not pay for any or all of your treatment if you choose this route.
Whatever you choose to do, best wishes to you.0October 2012 -
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I am surprised how tolerant most people are about their ports. I do appreciate mine, as I didn't have it for the first few treatments and ended up with an infection at the chemo site that was extremely painful and killed off some tissue (chemo must have spilled out). However, I find the port very uncomfortable and if I don't need it, want it out.
You are so right--cancer is a life changing word! Am wishing you all the best and that you never need your port again.0October 2012
