CakeLady

Hello whatnext community. It has been 5+ years since I posted. I have been well. I just finished with a clinical trial. I did 12 months of chemo and been on Revlimid since 2016. The trial has ended and now need to decide (with the Doctor of course) what will be my next plan. To continue with Revlimid is very expensive, though right now I am on a program that is paying for the drug. Is there anyone else out there that has been doing Revlimid therapy? How long have you been on it? What side affects you have had? My biggest problem was diarrhea. I just turned sixty and have had some problems with low energy but I don't know if it is from age or the drugs. My cancer is Follicular lymphoma with R-chop as my first treatment then 4 years later (3 years of remission then a year watching and waiting). I joined the Revlimid trial and did a year of chemo and the Revlimid until this past July. What is anyone else's experience? I am every grateful to have 12 + years living with this disease and appreciate that I have had good quality of life. But What Next? I appreciate any comments.