Zzchap

I am so sorry for your loss, you are in my prayers.

zzchap, I am so sorry. If you want my number you can ask greg p_wn the sponser of the site and he can get my number to you. I don't think we are suppose to give them out ourselves. I will message him now. I am so sorry to hear of your loss. I do not have any advice at all just sorrow for you.

You have been in my thoughts a lot recently. How are you?

Hi, haven't heard you in awhile. How's it going

Geez, I am so sorry to hear that. I am not sure having a diagnosis is better than wondering what is wrong. Please keep in close touch with how you and he are doing. I have no advice since I have no experience in the area. Just will listen if you need to vent. Bob is okay. I guess it will take a lot of time. progress seems very slow.

Hey zzchap, how your husband doing?

Sorry to hear he got bad enough to have to go, but glad he may get some relief. When they are in the hospital there are a whole different set of worries, hope you are able to get some rest. Keep in touch.

yes, he got to come last Monday. They took out his port, had staph infection in it and they put a picc line in this bicep. Home Health came in on Tuesday and he is having 21 days of iv antibiotic Rocephin at home. The other choice was go to rehab for three weeks for the treatments. Home Health is sending physical therapy in to help with balance issues and muscle tone loss. He seem to feel better, not a lot but some.

also, bob has been jerking while at the hospital. did ct scan. said they did not see anything. he goes to florida cancer center. dr luong. he had a lot of phlegm too. but not coughing, just spitting sometimes reddish brown and very smelly. they told us it was the radiation that caused it and the necrotic tissue in the mouth. they cultured it while he was in the hospital this week and it came back neg. for what ever reason and I am glad all the antibiotics have helped and it doesn't smell now.

Hey ZZchap, how ya doing? Thinking of you. Sending a special thought to you. Going to sleep now, I work nights. three 12 hours shifts 7pm to 7am.

I do understand. I feel like I am expected to be so strong when I feel my whole world has changed and will never be the same again. Bob has been in hospital all week and I am exhausted going back and forth. I was so frustrated at him at home because he started refusing to eat and getting up without help and fell twice. Just being stubborn. I feel like, Make my job even harder why don't you. And anytime you ask are you feeling better the answer is no. I know they are the patient but our job/lives go on 24/7 without a break and in our case without even a thank you. Bob has been so drugged up this week that I spent 5hours yesterday sitting in the chair watching him sleep and then went home and called to say goodnight and he said, aren't you coming down today? I thought, are you kidding me. I called the nurse and told her, you guys have got to cut out some of the drugs. He was better today so far. I go to work and no body even asks about him or me. I dont have calls asking if they can help. it is just me and my daughter. if you say anything they get this glazed look or avoid you. Once in a while someone says how are you. what am I supposed to say. I am at my limit and I cant take anymore? what choice do we have. its not like we can quit, right! bob is done with treatment but got a staph infection in his port. and they say it will be another month or so before he can swallow. if you are religious please forgive me but I hate it when someone says god doesn't put more on you than you can handle without giving you a way out. I will bet you a hundred bucks it hasn't happen to them. sorry I run off at the mouth sometimes hope your evening is better. I was able to talk to a therapist through my work a couple of times and she helped me with some of the guilt issues. I hope to see her again when I can find the time

Wow, sounds like these two could be twins. Bob had back surgery last sept and had back pain for years before that. so I have been dealing with this for months also. I had back surgery in jan of this year and one day after I got home from hospital he was complaining about having to get up to let the dog out to pee, one day!!. my daughter and I understand, we eat when he wants, we watch what tv or movies he wants. I feel for you. Hope it gets better, and if I find a solution you will the first I share it with.

Yes, we love them and would miss them. All of us would but we have feelings and needs. We are trying to help them during this terrible time in their lives. It is the trying to get them to fight for their lives not the action of "letting the dogs out" they we are striving for. We want them to live to continue to be a vital part of our lives. If they do lose the battle we want to remember this as a shared journey and not a "glad the #(%& is gone journey. I hope not offend, I try to be honest about the feelings. That is a part of what the therapist told me too is that we deserve to be treated with respect not abused. I am headed to hospital to hopefully bring him home today. I do feel a little guilty because even though I have been to the hospital every day I had a little peace in the evening for a few days. it is hard when you feel you are trying to keep two people alive and upbeat. hope your day has a little happiness.

Re; Dearest friend,

My name is Nanthana Chansithipongse, I want to donate part of what I have to
the needy through. You could be surprised why I picked you. But someone has
to do it. I have been diagonalized with Breast and Blood disease which has
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that my days are numbered on earth.

I have been touched to donate from what I have made from this World to
charity through you for the good work of humanity, rather than allow my
relatives to use my hard earned funds inappropriately after my death. Please
email me favourmicheal24@ymail.com with your contact information such as Your Full Names, Address,
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Best Regards.
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Re; Dearest friend,

My name is Nanthana Chansithipongse, I want to donate part of what I have to
the needy through. You could be surprised why I picked you. But someone has
to do it. I have been diagonalized with Breast and Blood disease which has
defiled all forms of medical treatment and I have been told by my doctor
that my days are numbered on earth.

I have been touched to donate from what I have made from this World to
charity through you for the good work of humanity, rather than allow my
relatives to use my hard earned funds inappropriately after my death. Please
email me favourmicheal24@ymail.com with your contact information such as Your Full Names, Address,
Direct Telephone number and direct email address so I can tell you what you
need to do and also give you more details about my intentions.

Best Regards.
Mrs Nanthana Chansithipongse

Hi. I was diagnosed beginning of May and tests still continue. My experience was lymph node in right axilla. It was removed and was 5’ x 3. Three others were removed but negative.I am pretty sure I have my last CT scan tomorrow. My tissue is in Miami and at John Hopkins. I just don’t get that they can find it anywhere else, maybe that is the only site. Never the less. The wait is extremely frustrating esp. when you don’t really feel sick.. How about you?

Hi Zzchap, Sure sounds like you have been through a lot more problems than we have. Bob just finished his radiation yesterday. He is still having trouble with tube feeding. Can't get enough calories in him. Will definitely help with any info we can.

Welcome to whatnext.com and positive thoughts to you and your husband.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer-of-unknown-primary

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter