Wic93

Congratulations to you too! I'm finding resting wasn't my strong talent, things I am learning along the way.

Congratulations on catching this in stage one. You can help me and others by telling us why at stage one you are having chemo/radiation. Good luck with your journey. We are here for you. Feel free to ask anything that's on your mind.

You had posted a response to one of my questions. I responded via my page but I am not sure if you would get flagged with my questions. So, I am posting here directly onto your page.

Wic93,

My Dr. is Dr. Tarin, a colleague of Dr. Nelson, is located at UPMC Mercy. In asking Dr. Tarin for recommendation for a second opinion, he suggested Dr. Nelson. He described Dr. Nelson as an excellent doctor.

You mentioned that you decided on a radical prostatectomy – was it robotic?

What were your Glen and PSA scores?

According to your profile, you are also having chemo and radiation – is this correct?

Did you also do research of hospitals to determine where you wanted the procedure to occur?

How are you doing?


Lee

Welcome to this site. I have been fighting aggressive prostate cancer for 11 years. I have made some mistakes and done a few things right in those years. I have posted a detailed writing of my journey for the past 11 years in the hopes that it may help others to see my mistakes and inform them on some of the things that may happen. In any event, I am glad you found this site. Here there are many "firsthand" information people who may be able to answer questions you have. In any event, don't forget the three main things to remember: Always get a second or third hand opinion; don't do anything to your body if it doesn't feel right or if you have that sinking feeling for no apparent reason that this is wrong for you; last, always keep a positive attitude and treat yourself like the temple you are. You are the caretaker of the temple and only you can guide yourself through this maze of decisions one who has cancer is continually faced with. The positive attitude can heal you as much as the treatment and drugs can.
Know that we are here for you and many of us have walked the same scary path as yourself with, in some cases, far less information, and knowledge. Use this site to assist in your education of what has gone on all around the world in the fight to control this disease. The great thing is it is all firsthand knowledge and that you are not alone in this struggle to control your particular cancer.
I hope that you find peace in this battle for it will do you more good than any drugs or treatments. May your God go with you, help you through the hard times, and enjoy the good times.
Welcome aboard. Michael

See that you seem to be following a similar pattern to mine. Just 3 years ago had surgery, then in 2010 May - July had radiation. Started Lupron & Casadex hormone therapy after surgery and just went off of those 2 months ago. PSA at 0. 08 as of now and feel good(ED has been major side effect - but coping with that) Wishing you the best as you take this journey.
A survivor, Ross

When I was first diagnosed, my urologist told me if I elected to have hormone therapy at the time, that it would be effective for only about 5 years. Then I would have to choose some other form of treatment. That was 12 years ago when I was 58. At the time, I chose to have nerve sparing abdominal surgery and have since had radiation, This worked for me because it worked and I've never been particularly good at waiting. My younger brother who was diagnosed about a year later also had abdominal surgery but I don't think it was nerve sparing. We are both cancer free but he is incontinent and I have complete bladder control. If I had that decision to make again, I might choose robotic surgery but nothing else would be different.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/prostate-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter