Strong-girl

I went through NHL - Double Hit, which is a very aggressive variation of non Hodgkin’s lymphoma. I was diagnosed in February of 2019. I went through and failed two chemos, and I got the new CAR-T Therapy in June, and have been in remission ever since, so if you have a teaching school near, like KU, that can administer CAR-T Therapy, I would highly recommend googleing and looking at doing that. I think CAR-T has been approved now as a second line treatment. In other words, I had to fail a first and second line chemo treatment, before I could get CAR-T as a third line treatment. I never could get to the BMT stage because my cancer didn’t respond to conventional chemo. Most people with NHL respond to conventional chemo, but I was in that very low percentage that didn’t, but I did respond immediately to the CAR-T. You can google CAR-T or check it out on the Kansas University’s (KU) website to read more about it. CAR-T can give you another shot at a cure, and not just managing it with chemo and bone marrow transplants if it comes back, but it comes with risks, but they were worth it for me. Hang in there and I hope you have a speedy recovery. Steve H.

You may be overwhelmed now, but things will get better. I was diagnosed in 2005 and have lived a full life since then with a few minor bumps along the way.

Welcome to the site, we are happy to have you with us but sorry for you having to be here. There are lots of people here with all types of cancer diagnoses. If you need to vent, ask questions, or just post how you're feeling today you can do that on the questions page, or just make a status update post.

Don't be shy, jump in the conversations!

If you share the type/sub-type of the NHL you have and the plan for treatment, you will receive more specific answers to your question. I took 4 treatments once a week of Rituxan. Minor reaction controlled with Benadryl. Po18guy posted good questions. Blessings.

Welcome to whatnext. There's lots of people who can help you get through your diagnosis here. Just ask what you want on the questions page.

GregP
Whatnext.com mgr.
Social networking mgr.
4X survivor

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter