Rolltidelynne

I truly appreciate your response to the in/out patient stem cell question but I DO TRUST my dr. and all the medical staff. I am at one of the best hospitals in the country. Even the insurance companies have said they are on top with great response. I do feel medical treatments and protocol are changing constantly and with your stem cell transplant being 2 yrs ago a lot of thoughts and changes have been and are continuing to be made in all fields of medicine. The point was made to me that hospitals can definitely have more germ risks than at home and since I am 10 min form the hospital and it was an option given to me I was looking to see if anyone had gone this route

Sorry to hear about your niece. I'm praying that she will over come this.

Thank you so much for posting..It helps give me a better understanding of what my cousin is going through..Have a BLessed Day Cathy

Check out this site below AND his facebook page.
Also the new book RADICAL REMISSION by Kelly Turner PhD.

http://www.chrisbeatcancer.com/

Barry

Hi, the Endo will help. I almost started crying when I went into the exam room. My old PCP-he was replaced a few days after I saw the Endo-referred me for diabetes and I was fighting the system about that. Apparently he got the lab to dummy my glucose tests- the lab manager said " That won't hurt anybody" I went into the Endo room and they had a huge plastic thyroid on the wall. The Endo clinic even sent me my fee back as an apology or so I'd feel they care. I feel they care-- they went over my labs-records and the Endo said when she came in-- You don't have any form of diabetes, your thyroid isn't working right.

Hi Lynn,
Thanks for your concern. You are spot on in everything you said. I don't want to die drunk. The only thing that would change that is PAIN. I insist on a pain free death.
I will do whatever it takes to avoid the pain of the dying process.

You are right about the effects of pain meds too. I'm on hydrocodone-acetaminophen 10-325 every four hours, and I haven't felt any kind of euphoric high. I am ever so grateful for that. I thought sure I would be hooked the minute I opened the bottle. It dulls the pain, but doesn't really get rid of it.

I'm surprised your meds don't knock you down, OR make you high. That sounds like the drug combination I would want when the pain gets really bad, and the attitude takes a dump. Please tell me your drug combo elevates your attitude. Thanks again.

If no one else has told you today: I Love You,
Dean

Just wanted you to know how much I appreciate your input. Thanks --- Dean

Hi Lynne, just wanted to give you an update, Ive been at gift of life transplant house in Rochester, for two weeks now. in four days i start melphalan, for two days and then I will get my stem cells on the third day. Hope all is going well your way! God Bless!

Libhurst, I too am about to go through BMT, and was wondering if you had lower back pain prior to the transplant, and do you have it now

Good Morning! I hope all is well your way. I havent been online for a while. My son graduated this June, and I had a graduation party for him a couple of weeks ago! alot of work, even though I had alot of help it caught up with me a few days later, I was down for the count! I keep getting diverticulitis, one DR. told me it was the dex but I had it before I started the dex. I will see my regular DR. on monday about it. I have been on antibiotics twice for it, but I get a bad bout with it almost every week. Im in bed all day with the fever and chills and pain. I just get through it, but Im scared to death to eat anything. So now after last week I made another appointment and hopefully I can get this figured out! If you have a chance I'm wondering about what changes you have made in your diet, I try to eat healthy, but I do still eat junk food now and then. I have gone to the extreme and just juiced and ate only organic. I know there are endless sites about what we should eat and I have checked alot of them out. On August 20th I am scheduled to start my stem cell transplant. I will stay at a transplant house in Rochester MN and my Aunt will be my caregiver. I toured it back in May. I thought it smelled like fresh fish, on the hook fresh, L.O.L. but its a really nice place and the people are fantastic! O.K. I better get started on my day! Have a great day, God Bless!

Hi Llbhurst, Thanks for sharing your experiences. When I started the Rev-Dex my nurse told me they would do a cbc once a month. i told her that the pharmacist said once a week the first month. She became very cool with me and said " once a month is enough." I called my Dr. at Mayo clinic and explained the situation, in return he gave my oncologist here at home a call and told him I needed a cbc every week for the first month. Im two weeks into my second month and before I started I asked the same nurse If I come in twice a month now for a cbc and she said she had to find out, its been two weeks since then. I plan on calling to find out the plan. It definitely doesnt feel like a team effort. I feel like Im an inconvenience to the oncology department in my home town. But I cant afford to drive three hours to the next closest clinic. I just thank God for my Dr. at Mayo.

dear Llbhurst, hope all is good your way. Thanks for writing. I usually dont check whatnext until my dex kicks in and I cant get to sleep, so wed. nights I have a little more energy. come friday I start to get really sick with fever and chills alot of abdominal pain and my weekends are spent in bed. So i really apreciate wed. and thurs. because I feel better. Im scheduled to start my transplant stuff, august 20th at Mayo.I just keep thinking when its all over I will be myself again, God willing. If you have any tips feel free to send them my way! Take care, God Bless.

Dear Llbhurst, Thank you so much for the information, I cant tell you how much this means to me. I will be having an autologous transplant on august 20th at mayo. i will be staying at gift of life transplant house. What you shared with me is what I need to know! I do much better when I have a picture of what to expect with all the details. I have always been a strong take the bull by the horns, type person. I have raised my kids on my own ect. I like to be in control....so even though I knew this was coming because of having mgus, when I was diagnosed something in me died, and then to start the medications on top of all the feelings, It seems like my brains been in a whirl wind and I just want it to stop so I can think straight and get grounded. That dex really gets me messed up, body and mind. I cut back to 5 pills instead of ten and it has made a huge difference. Please feel free to share whatever you think will help! Again thanks for sharing!!!! God Bless!

Thank you for your message. You are right, Our stories are very similar. My three sons are grown up. 25, 21 and my youngest just turned 18. They have been incredible. My middle son has been suffering from anxiety since my diagnosis, but slowly he is returning to normal also. I am perpetually on maintenance meds and probably will be for the rest of my life. I see some MM patients talk about being off meds. I am envious and don't know why I can't. I will need to ask tomorrow at my next appt. I too will be here if you ever need someone to talk to.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/multiple-myeloma

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

My Dearest In The Lord Jesus.
Greetings I am Mrs. Ava Denzel, from Kuwait. I am married to late Mr. Valasca Denzel,who worked with Kuwait Embassy in Cote d'Ivoire for Twenty-Sixyears before he died in the year 2011, after a brief illness that lasted for only 2 weeks.
I am an ageing widow suffering from long time illness. i am currently admitted in a privet hospital in Cote d'Ivoire i have some funds I inherited from my late loving husband Mr Valasca Denzel, the sum of (USD $5,Five Million United State Dollars) whichhe deposited in one of the famous Bank and I need a very honest and God fearing Person that can use this funds for The good work of God's to help the charities, and 20% out of the total funds will be for your compasession for doing this work of God.
I found your email address from the Internet and decide to contact you.Please if you would be able to use these funds for the Lord's work kindly reply me.
Thanks for your co-operations
Your Sister In The Lord.
Mrs Ava Denzel.
Email_mrs_avadenzel()yahoo.co.jp

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter