LuvinSis

Sorry for your loss. Hugs to you and your family!

I am so very sorry to read about your sister's death. Big hugs!

Thanks for the detailed tips. Your work and good will contribution is appreciated. For the loved one you lost, and the one we'll be adding to our lift list, we are also blessed to have met you, and so thankful. We've got our checklist of all the contributions and carrying them to get all this started, finding out what Illinois has, needs, offers and requires. Have a good day. Be well, both of you, as well as all those you still reach out to help.

Hello LuvinSis, My name is Angela and my brother was diagnosed last month with Adenocarcinoma stage 3b lung cancer, he just had a pet scan and is waiting for the results. I was wondering how long it took before you started chemo/radiation after you was diagnosed.

I am so very sorry about the loss of your sister. When did you decide to call hospice ? my mom is 82 and Dr says she has advanced lung cancer . Ct and MRI are the only test she has had. she does not want further testing. Dr says there are several masses in both lungs and gives her 1 yr. Mom has occasional wheezing and coughing but other than fatigue feels fine. I have not called hospice yet. 02 stats are always about 96. I am confussed on what to expect.

Welcome to WhatNext. I'm a lung cancer survivor, diagnosed September 2011.

I've been through the lobectomy, chemotherapy and radiation, and am at the 1 year mark from having been diagnosed.

I know how scary all this stuff is - both for the patient, and for their family and friends.

I have found WhatNext to be a great supportive group here. If you have any questions, please don't hesitate to reach out. You can message me directly, or post to my wall - I always try to respond.

Is there a way to message each other on here?

Luvinsis,Thank you for your answer to my ssi etc question.Great answer-even I could understand you! All true,I am expecting my past employers' LTD carrier to "redefine" my ststus to any job. I would only get 800$ per month.As is I get double that, minus 100 for med part a &b I pay 600 month rent and have 12000 $ dr,hosp bills.Know anything about spenddowns? I am currently about two hundred bucks over every limit.ex-I used to recieve 16 bucks monthly dshs food credits,wow but it was something.I have to schlepp to local food banks weekly just to keep some kind of food.My med supplies are gonna nickel and dime me to death with colostomy pouches and whatnot,now also I am starting to need calcium and various meds for bone loss,sleep aids, and if there were anything for peripheral neuropathy I would be taking it too. Any ideas,recomendations are greatly accepted. I am a bit worried about my redefination because I do not agree with my doctor(at the time,new) and his limitations-or lack thereof listed in his paperwork forwarded to said LTD insurance carrier. DW

Thank you for the info. This site is so awesome!! I will look in to this for her.

Thanks for the update. I will speak to my oncologists about Tivozanib

You commented on my post where I was freaking out after my diagnosis and I would like to keep in touch. I am finding it really helps to exchange with those in the same circumstances. You had mentioned your sister in your comments.

Greensmythe

Hi Karin, I appreciate your post on my question about my wife. I'm considering starting a Relay for Life team for our event in McKinney in April. I'm going to try and get her involved in it. It seems as though we're surrounded by cancer and she wants to be as far away from it as possible. Hopefully I can get her to do the relay with me in April. I'm signed up on a team whch has their relay this Saturday. She is planning to come out for a little while or long enough the drop my daughter off. We'll see...

So sorry to hear of your battle with chronic pain from spine issues and surgery, I myself have been dealing with pain docs for about 30 years, (3.5 years doesn't sound that long now does it?) so I DO and can relate. I don't know if my oncologist can/will refer me to a better pain doc, I've had that thought in my head since I learned of my diagnosis. And yes, I will ask for that referral Wednesday.The treatments that I'll receive for my cancer will be focused on my head and throat, so no I do not believe they will reduce my pre-cancer pain. I can also tell you that IF you have a "GOOD" pain management doc, you'd better hang on to him/her for dear life. It took me many years to find one that was willing to help me. Too bad he bailed on me when a temporary health issue caused a problem in March 2010. I know the decision to treat or not to treat "should" be my own, however being married and having a tight knit family, no matter how small, DOES have a definite bearing on ones choices and I just do not feel I have the right to bail out on them and that's what makes this all so difficult. I've been researching, as much as possible, I don't know of any other options, or then accept treatment or decline treatment, I'm hoping I get to hear of some options this week. I don't think I'll ever be truly at peace with any decision that I make, as much as I want to be here for my family over the long haul, I'll never be at peace with all the pain involved. The best I can hope for is to make a decision both my family and I can accept. Good luck with your spine trek I DO know how ugly things can get on that road and thanks for being here not only for the likes of me, but for your sister as well. I wish you both the best.