LillyRoseJazz

Activity

  • JoAnninCal
    Hi Lilly...Inflammatory is very scary. My surgeon said I have 5 yrs. Should I believe her? she added that she had two patients with Inflammatory who made it past 10 yrs. What are they telling you? Are there clinical trials available? I have completed all treatment and the last ct petscan said NO EVIDENCE of DISEASE. WRITE ME AT joannRWhite@msn.com
    February 2017
  • JoAnninCal
    I was diagnosed with Inflammatory July 2014. Hope you are doing better. Praying. You haven't posted for 4 mos. I'm also on mybcteam.com joannsurvivor
    November 2016
  • GregP_WN
    Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/breast-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you

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    GregP 3X Survivor
    WhatNext Community Mgr.
    June 2016
  • Lindy
    You and my beloved maternal grandmother share the same name, she was a wonderful example of play it forward. I wish for you the best and love.
    June 2016
  • PennieEckard
    Hi LillyRose. I'm sorry to hear about the mets
    June 2016
  • jujurrr
    I would look into marijuana oil , California and Oregon have great programs, I'm not sure about Washington. You take a few drops 2x a day. It helps brain tumors ( glioblastomas) and HER2 + breast cancer, which has similar treatments as IBC. I know it has helped people that I know. Wishing you well.
    June 2016
  • CAS1
    Look into a clinical trial they are not what they used to be. We are so close to cures this could save your life.
    June 2016
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    June 2016